Initiating non-invasive ventilation in patients with Amyotrophic Lateral Sclerosis in The Netherlands: A centralised approach to respiratory care
Key outcomes of the Dutch centralised respiratory care approach have shown that most patients were initiated on non-invasive ventilation due to presence of hypercapnia and/or dyspnoea/orthopnea, which is according to the Dutch guidelines. Half of patients spent at least 33% of their disease duration on non-invasive ventilation. To help find the optimal criteria and timing for non-invasive ventilation it would be useful for other countries to share their key outcomes as well.
Authors
- Michael A. Gaytant (ORCID: https://orcid.org/0009-0003-0994-9845)
- Johanna M. A. Visser‐Meily (ORCID: https://orcid.org/0000-0002-5955-8012)
- Peter J. Wijkstra (ORCID: https://orcid.org/0000-0002-3809-5725)
- Anita Beelen (ORCID: https://orcid.org/0000-0002-1269-0710)
- Jochem Helleman (ORCID: https://orcid.org/0000-0002-3651-2564)
- Leonard H. van den Berg (ORCID: https://orcid.org/0000-0002-6559-3965)
- Rineke JH Jaspers Focks (ORCID: https://orcid.org/0009-0005-7400-4391)
Institutions
- University Medical Center Groningen (NL)
- University of Groningen (NL)
- Utrecht University (NL)
- University Medical Center Utrecht (NL)
- Roessingh Research and Development (NL)
Publication Details
- Journal
- Journal of Neuromuscular Diseases
- Published
- 2025-03-16
- DOI
- https://doi.org/10.1177/22143602251319167
- Citations
- 1
- Primary Topic
- Amyotrophic Lateral Sclerosis Research
- Type
- article
- Field-Weighted Citation Impact
- 1.39
Funders
- Universitair Medisch Centrum Utrecht