Closing the gap in kidney disease: validating the reporting of Aboriginal and/or Torres Strait Islander identification in a clinical quality registry using linked data
Aboriginal and/or Torres Strait Islander people were under-reported in ANZDATA. There were multiple biases in characteristics and outcomes for people identified in ANZDATA compared with those identified by ERA using linked data. This highlights the importance of data integration as a quality improvement mechanism and identifying barriers to disclosure.
Authors
- Heather Baldwin (ORCID: https://orcid.org/0000-0001-9991-5419)
- Nicole De La Mata (ORCID: https://orcid.org/0000-0001-7739-3656)
- Brett Biles (ORCID: https://orcid.org/0000-0001-8635-9855)
- Grant E. Sara (ORCID: https://orcid.org/0000-0002-3762-1711)
- Jianyun Wu (ORCID: https://orcid.org/0009-0007-7851-182X)
- Angela C Webster (ORCID: https://orcid.org/0000-0001-7509-0512)
- Faye McMillan (ORCID: https://orcid.org/0000-0002-9441-7805)
- Paul Lawton (ORCID: https://orcid.org/0000-0002-5754-4821)
- Stephen McDonald (ORCID: https://orcid.org/0000-0001-7151-7654)
Institutions
- University of Technology Sydney (AU)
- The University of Sydney (AU)
- Royal Adelaide Hospital (AU)
- Charles Sturt University (AU)
- Government of New South Wales (AU)
- Children's Hospital at Westmead (AU)
- Westmead Hospital (AU)
- Charles Darwin University (AU)
- UNSW Sydney (AU)
- Australia and New Zealand Dialysis and Transplant Registry (AU)
- Monash University (AU)
Publication Details
- Journal
- The Medical Journal of Australia
- Published
- 2025-03-16
- DOI
- https://doi.org/10.5694/mja2.52613
- Primary Topic
- Global Maternal and Child Health
- Type
- article
- Field-Weighted Citation Impact
- 0.00
Funders
- National Health and Medical Research Council