Moyamoya disease: Understanding patient experiences through thematic analysis of Instagram, TikTok, and Twitter posts
This study demonstrates social media's use among moyamoya patients, and can supplement traditional methods of obtaining patient feedback. Despite limitations, leveraging social media can enhance understanding patient needs, ultimately improving care quality for Moyamoya disease patients.
Authors
- Mohamed M. Salem (ORCID: https://orcid.org/0000-0002-2082-6892)
- Visish Mani Srinivasan (ORCID: https://orcid.org/0000-0001-7673-6805)
- Arnav Barpujari
- Georgios S. Sioutas (ORCID: https://orcid.org/0000-0003-3937-4029)
- Jan‐Karl Burkhardt
- Brian Thomas Jankowitz (ORCID: https://orcid.org/0000-0002-5371-5363)
- Avi A. Gajjar (ORCID: https://orcid.org/0000-0003-3686-9413)
- Neo Y. Hou
- Eli Hou
Institutions
- Harvard University (US)
- Hospital of the University of Pennsylvania (US)
- Harvard University Press (US)
- University of Florida (US)
- University of Massachusetts Boston (US)
- Penn Center for AIDS Research (US)
- University of Pennsylvania Health System (US)
Publication Details
- Journal
- Journal of Stroke and Cerebrovascular Diseases
- Published
- 2025-03-15
- DOI
- https://doi.org/10.1016/j.jstrokecerebrovasdis.2025.108293
- Citations
- 1
- Primary Topic
- Tracheal and airway disorders
- Type
- article
- Field-Weighted Citation Impact
- 1.52