Advance care planning and quality of life: A qualitative interview study in people with young-onset dementia and their family caregivers
The perception of young-onset dementia and its impact on quality of life varies among people with young-onset dementia and their family caregivers, but common values include a sense of self and connection to others. Advance care planning should be introduced as a way to protect these values and align them with palliative care goals.
Authors
- Christian Bakker (ORCID: https://orcid.org/0000-0002-7176-2796)
- Jenny Theodora van der Steen (ORCID: https://orcid.org/0000-0002-9063-7501)
- T. D. de Wit
- Marieke Perry (ORCID: https://orcid.org/0000-0003-0675-9678)
- Marjolein Elizabeth de Vugt (ORCID: https://orcid.org/0000-0002-2113-4134)
- Jasper Maters (ORCID: https://orcid.org/0000-0002-4104-3934)
- Raymond T.C.M. Koopmans (ORCID: https://orcid.org/0000-0003-0209-6942)
Institutions
- Radboud University Nijmegen (NL)
- King's College London (GB)
- Leiden University Medical Center (NL)
- Radboud University Medical Center (NL)
- Maastricht University (NL)
- Groenholland (Netherlands) (NL)
- Cicely Saunders International (GB)
Publication Details
- Journal
- Palliative Medicine
- Published
- 2025-03-15
- DOI
- https://doi.org/10.1177/02692163251324796
- Citations
- 6
- Primary Topic
- Palliative Care and End-of-Life Issues
- Type
- article
- Field-Weighted Citation Impact
- 11.27
Funders
- ZonMw