Into Adulthood: Assessing Parental Perceptions and Concerns for Pediatric Heart Transplant Recipients Around the Transition Into Adult Care
Although parents of pediatric HTx recipients reported mostly positive QoL outcomes, they have concerns related to care management, life satisfaction, and healthcare access as their children transition into adulthood. Comprehensive transition-specific interventions and guidelines are needed to support families during this high-risk period.
Authors
- Max Downey (ORCID: https://orcid.org/0000-0003-4874-1679)
- Katya Kaplow (ORCID: https://orcid.org/0000-0003-4080-0443)
- Melissa K. Cousino (ORCID: https://orcid.org/0000-0002-0041-0830)
- Allan B. Massie (ORCID: https://orcid.org/0000-0002-5288-5125)
- Dorry Lidor Segev (ORCID: https://orcid.org/0000-0002-1924-4801)
- Carolyn N. Sidoti (ORCID: https://orcid.org/0000-0002-0491-7137)
- Macey Leigh Levan (ORCID: https://orcid.org/0000-0002-4239-1252)
- Melissa McQueen (ORCID: https://orcid.org/0000-0002-4268-1049)
- Manu Varma
- Rakesh K. Singh (ORCID: https://orcid.org/0000-0002-7410-6209)
- Joseph P. Hillenburg (ORCID: https://orcid.org/0000-0002-8543-5155)
- Kathleen Anderson
- Conor Donnelly (ORCID: https://orcid.org/0009-0007-0826-8107)
Institutions
- University of Michigan (US)
- Families USA (US)
- NYU Langone Health (US)
- Michigan United (US)
Publication Details
- Journal
- Pediatric Transplantation
- Published
- 2025-03-14
- DOI
- https://doi.org/10.1111/petr.70062
- Primary Topic
- Adolescent and Pediatric Healthcare
- Type
- article
- Field-Weighted Citation Impact
- 0.00
Funders
- National Institute of Allergy and Infectious Diseases
- National Institute of Diabetes and Digestive and Kidney Diseases