Donation-related decision-making among young adult Black and Hispanic members of a hematopoietic stem cell donor registry: A qualitative study
• Scarcity of donors for diverse patients drives Black/Hispanic donor motivation. • Black and Hispanic participants report experiencing medical mistrust. • Donor registration often happens without discussions with parents/families. • Some donors and families harbor misconceptions about the donation process. • Balancing school, work, and family poses challenges to donor participation.
Authors
- Dennis L. Confer (ORCID: https://orcid.org/0000-0002-3610-2637)
- Ahmed B. Hamed (ORCID: https://orcid.org/0000-0001-7922-6587)
- Alicia Dawdani
- Megan Hamm (ORCID: https://orcid.org/0000-0002-7842-5290)
- Galen E. Switzer (ORCID: https://orcid.org/0000-0001-8541-9449)
- Vidya Kuniyil
- Deborah Mattila
- Jessica G. Bruce
- Larissa Myaskovsky (ORCID: https://orcid.org/0000-0002-7268-1517)
- Mary Amanda Dew (ORCID: https://orcid.org/0000-0002-4666-1870)
- Noor Ahmed
- Eric Williams
Institutions
- National Marrow Donor Program (US)
- University of New Mexico (US)
- University of Pittsburgh (US)
- University of Illinois Chicago (US)
Publication Details
- Journal
- SSM - Qualitative Research in Health
- Published
- 2025-03-14
- DOI
- https://doi.org/10.1016/j.ssmqr.2025.100545
- Primary Topic
- Palliative Care and End-of-Life Issues
- Type
- article
- Field-Weighted Citation Impact
- 0.00