The Unseen Burden: A Qualitative Investigation of Polish LGBTQ+ Caregivers’ Experiences

<b>Background/Objectives</b>: As the world's population ages, the growing number of individuals affected by Alzheimer's disease and related dementias (ADRDs) will undoubtedly continue to impose social and economic challenges. Informal caregivers play a crucial role in providing essential support for individuals with ADRD. However, there is limited research that investigates the psychosocial functioning of caregivers (partners) from minoritized groups. <b>Methods</b>: This study aimed to explore the experiences of lesbian, gay, bisexual, transgender and queer (LGBTQ+) caregivers of individuals with ADRDs. Semi-structured in-depth interviews were conducted with seven caregivers of partners diagnosed with ADRDs. Three themes were identified based on reflexive thematic analysis: (i) experiencing familial alienation; (ii) fear about the future; and (iii) finding strength in the face of adversity. <b>Results</b>: The research highlighted difficulties reported by LGBTQ+ caregivers, while also showing how such caregivers cope. The findings provide a basis for developing targeted interventions for caregivers from minoritized groups. <b>Conclusions</b>: These findings have important implications for policy and intervention development concerning LGBTQ+ caregivers' mental and physical health outcomes.

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Publication Details

Journal
Journal of Clinical Medicine
Published
2025-03-14
DOI
https://doi.org/10.3390/jcm14061959
Citations
1
Primary Topic
LGBTQ Health, Identity, and Policy
Type
article
Field-Weighted Citation Impact
2.44
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article

The Unseen Burden: A Qualitative Investigation of Polish LGBTQ+ Caregivers’ Experiences

Magdalena Leszko
1 citations
Journal of Clinical Medicine
LGBTQ Health, Identity, and Policy
2.44
article

The Unseen Burden: A Qualitative Investigation of Polish LGBTQ+ Caregivers’ Experiences

Magdalena Leszko
article en
1 citations

Abstract

<b>Background/Objectives</b>: As the world's population ages, the growing number of individuals affected by Alzheimer's disease and related dementias (ADRDs) will undoubtedly continue to impose social and economic challenges. Informal caregivers play a crucial role in providing essential support for individuals with ADRD. However, there is limited research that investigates the psychosocial functioning of caregivers (partners) from minoritized groups. <b>Methods</b>: This study aimed to explore the experiences of lesbian, gay, bisexual, transgender and queer (LGBTQ+) caregivers of individuals with ADRDs. Semi-structured in-depth interviews were conducted with seven caregivers of partners diagnosed with ADRDs. Three themes were identified based on reflexive thematic analysis: (i) experiencing familial alienation; (ii) fear about the future; and (iii) finding strength in the face of adversity. <b>Results</b>: The research highlighted difficulties reported by LGBTQ+ caregivers, while also showing how such caregivers cope. The findings provide a basis for developing targeted interventions for caregivers from minoritized groups. <b>Conclusions</b>: These findings have important implications for policy and intervention development concerning LGBTQ+ caregivers' mental and physical health outcomes.

Journal of Clinical MedicineVol. 14(6)
University of Szczecin (PL), Moravian University (US)
Openalex Percentile: Top 15%
LGBTQ Health, Identity, and Policy
2.44
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