How Do Patients with Hypermobile Ehlers-Danlos Syndrome Cope with This Medical Condition? An Analysis of Autobiographical Narratives in Relation to Pain Perception and Affect Regulation Capabilities
The present findings seem to confirm the association between affect regulation, pain, and linguistic measures, sustaining an elaborative process. Specifically, the experience of chronic pain associated with the discovery of the rare disease becomes a meaningful experience in one's life condition and supports the ability to cope with the experience of chronicity.
Authors
- Filippo Camerota (ORCID: https://orcid.org/0000-0002-0268-4026)
- Alessia Renzi (ORCID: https://orcid.org/0000-0002-8553-4444)
- Michela Di Trani (ORCID: https://orcid.org/0000-0002-5085-3453)
- Rachele Mariani (ORCID: https://orcid.org/0000-0001-5952-3525)
- Massimo Pasquini (ORCID: https://orcid.org/0000-0003-3959-8137)
- Claudia Celletti (ORCID: https://orcid.org/0000-0001-7154-5882)
- Lorenzo Colaboni
- Marta Anna Stella Vizzini (ORCID: https://orcid.org/0009-0004-9438-1437)
- Giada Petronelli
Institutions
- Policlinico Umberto I (IT)
- Link Campus University (IT)
- Sapienza University of Rome (IT)
Publication Details
- Journal
- Healthcare
- Published
- 2025-03-14
- DOI
- https://doi.org/10.3390/healthcare13060636
- Primary Topic
- Medical and Biological Sciences
- Type
- article
- Field-Weighted Citation Impact
- 0.00