Experiences and challenges of people with multiple sclerosis and low attendance to clinical follow-up: a qualitative study
People with MS who do not attend regular specialized care face physical and cognitive challenges that impact their self-care abilities. Participants experienced disruptions in care pathways with inadequate symptom management tools, felt undervalued by the health care system, and struggled with limited recognition of symptoms and disease progression, all of which hindered their ability to manage their health and daily life effectively.
Authors
- Marcus Beck (ORCID: https://orcid.org/0000-0003-1940-2571)
- Agata Beczek (ORCID: https://orcid.org/0000-0003-1191-7300)
- Stine Gundtoft Roikjær (ORCID: https://orcid.org/0000-0002-5851-7577)
- Charlotte Simonÿ (ORCID: https://orcid.org/0000-0003-1189-2967)
- Morten Dahl (ORCID: https://orcid.org/0000-0002-6686-312X)
- Lars Kristian Storr
- Eskild Landt (ORCID: https://orcid.org/0000-0002-3426-4819)
Institutions
- Roskilde University (DK)
- University of Copenhagen (DK)
- University of Southern Denmark (DK)
- Zealand University Hospital (DK)
- Slagelse Hospital (DK)
- Ringsted Sygehus (DK)
- Zealand University Hospital Køge (DK)
Publication Details
- Journal
- BMC Neurology
- Published
- 2025-03-13
- DOI
- https://doi.org/10.1186/s12883-025-04106-7
- Citations
- 3
- Primary Topic
- Multiple Sclerosis Research Studies
- Type
- article
- Field-Weighted Citation Impact
- 4.41