Presence and Content of Goals-of-Care Documentation for Patients With Adult Congenital Heart Disease at End-of-Life
GOC documentation for patients with ACHD near end-of-life is suboptimal, yet when present contains information about patients' wishes. Future work should promote early GOC discussion and enhanced documentation to guide clinical care in this population.
Authors
- Ruth A. Engelberg
- Michael Meno (ORCID: https://orcid.org/0000-0001-8640-7693)
- James N. Kirkpatrick (ORCID: https://orcid.org/0000-0003-0877-7618)
- Jill M. Steiner (ORCID: https://orcid.org/0000-0002-1333-6836)
- James Sibley
Institutions
- Twitter (United States) (US)
- University of Washington (US)
- Harborview Medical Center (US)
Publication Details
- Journal
- JACC Advances
- Published
- 2025-03-13
- DOI
- https://doi.org/10.1016/j.jacadv.2025.101645
- Citations
- 1
- Primary Topic
- Palliative Care and End-of-Life Issues
- Type
- article
- Field-Weighted Citation Impact
- 1.88
Funders
- National Institutes of Health