Patient experience of alpha-1 antitrypsin deficiency-associated liver disease: a qualitative study
Several concepts were frequently reported as moderately/highly bothersome/disturbing. Further investigation of the experience of patients with AATD-LD in a large, diverse population across all fibrosis stages and genotypes is warranted. Clinical outcome assessments that capture salient concepts are needed.
Authors
- Chitra Karki (ORCID: https://orcid.org/0000-0001-9336-7589)
- Robert Krupnick
- Virginia Clark (ORCID: https://orcid.org/0000-0001-6719-3634)
- Justin Reynolds
- Suna Park (ORCID: https://orcid.org/0000-0003-0793-1644)
- Nicole Sparling
- Jason Ritchie
Institutions
- Creighton University (US)
- St. Joseph's Hospital and Medical Center (US)
- University of Florida (US)
- IQVIA (United States) (US)
- Takeda (United States) (US)
- University School (US)
- IQ Solutions (US)
Publication Details
- Journal
- Quality of Life Research
- Published
- 2025-03-13
- DOI
- https://doi.org/10.1007/s11136-025-03926-x
- Primary Topic
- Liver Disease and Transplantation
- Type
- article
- Field-Weighted Citation Impact
- 0.00