Sarcoma Assessment Measure-Paediatric Version (SAM-Paeds): development of a disease-specific patient reported outcome measure for children with sarcoma
This study has developed the first disease-specific HRQoL measure for paediatric sarcoma patients. SAM-Paeds is planned for inclusion within international sarcoma clinical trials and will be validated alongside current generic measures. Developed with the same methodology as the adult SAM questionnaire will facilitate the assessment of QoL longitudinally to assess the long-term impact of the diagnosis and treatment of sarcoma in childhood.
Authors
- Rachael Windsor (ORCID: https://orcid.org/0000-0002-9614-0811)
- Meriel Jenney (ORCID: https://orcid.org/0000-0002-2612-4621)
- Rachel M. Taylor (ORCID: https://orcid.org/0000-0002-0853-0925)
- Craig Gerrand (ORCID: https://orcid.org/0000-0003-3043-4507)
- Sian Hocking
- Madeleine Adams (ORCID: https://orcid.org/0000-0001-6169-1149)
- Sophie-Anne Purnell
Institutions
- University College London Hospitals NHS Foundation Trust (GB)
- Noah's Ark Children's Hospital for Wales (GB)
- Royal National Orthopaedic Hospital NHS Trust (GB)
- University College London (GB)
Publication Details
- Journal
- Journal of Patient-Reported Outcomes
- Published
- 2025-03-11
- DOI
- https://doi.org/10.1186/s41687-025-00857-6
- Citations
- 2
- Primary Topic
- Childhood Cancer Survivors' Quality of Life
- Type
- article
- Field-Weighted Citation Impact
- 6.99