Online Communities as a Support System for Alzheimer Disease and Dementia Care: Large-Scale Exploratory Study
This study reveals that online communities dedicated to AD/ADRD support engage in discussions on a wide range of topics, such as memory care, nursing, caregiving, and legal and financial challenges. The findings shed light on the key pain points and concerns faced by individuals managing AD/ADRD in their households, revealing how they leverage online platforms for guidance and support. These insights underscore the need for targeted institutional and social interventions to address the specific needs of AD/ADRD patients, caregivers, and other family members.
Authors
- Ravi Karkar (ORCID: https://orcid.org/0000-0003-1467-4439)
- Yoshee Jain (ORCID: https://orcid.org/0009-0005-6291-5438)
- Koustuv Saha (ORCID: https://orcid.org/0000-0002-8872-2934)
- Chunyu Liu (ORCID: https://orcid.org/0009-0007-4026-3314)
- Sidharth Kaliappan
Institutions
- University of Illinois Urbana-Champaign (US)
- Amherst College (US)
Publication Details
- Journal
- JMIR Aging
- Published
- 2025-03-08
- DOI
- https://doi.org/10.2196/68890
- Citations
- 4
- Primary Topic
- Digital Mental Health Interventions
- Type
- article
- Field-Weighted Citation Impact
- 6.18