Online Communities as a Support System for Alzheimer Disease and Dementia Care: Large-Scale Exploratory Study

This study reveals that online communities dedicated to AD/ADRD support engage in discussions on a wide range of topics, such as memory care, nursing, caregiving, and legal and financial challenges. The findings shed light on the key pain points and concerns faced by individuals managing AD/ADRD in their households, revealing how they leverage online platforms for guidance and support. These insights underscore the need for targeted institutional and social interventions to address the specific needs of AD/ADRD patients, caregivers, and other family members.

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Publication Details

Journal
JMIR Aging
Published
2025-03-08
DOI
https://doi.org/10.2196/68890
Citations
4
Primary Topic
Digital Mental Health Interventions
Type
article
Field-Weighted Citation Impact
6.18
Controls
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article

Online Communities as a Support System for Alzheimer Disease and Dementia Care: Large-Scale Exploratory Study

Ravi Karkar, Yoshee Jain, Koustuv Saha, Chunyu Liu et al.
4 citations
JMIR Aging
Digital Mental Health Interventions
6.18
article

Online Communities as a Support System for Alzheimer Disease and Dementia Care: Large-Scale Exploratory Study

Ravi Karkar, Yoshee Jain, Koustuv Saha, Chunyu Liu, Sidharth Kaliappan
article en
4 citations

Abstract

This study reveals that online communities dedicated to AD/ADRD support engage in discussions on a wide range of topics, such as memory care, nursing, caregiving, and legal and financial challenges. The findings shed light on the key pain points and concerns faced by individuals managing AD/ADRD in their households, revealing how they leverage online platforms for guidance and support. These insights underscore the need for targeted institutional and social interventions to address the specific needs of AD/ADRD patients, caregivers, and other family members.

JMIR AgingVol. 8
University of Illinois Urbana-Champaign (US), Amherst College (US)
Openalex Percentile: Top 4%
Digital Mental Health Interventions
6.18
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Online Communities as a Support System for Alzheimer Disease and Dementia Care: Large-Scale Exploratory Study — Ravi Karkar, Yoshee Jain, et al. · JMIR Aging (2025) | TGRS Research Map | TGRS