Co-production of the ‘My SJS Passport’ to support survivors of Stevens–Johnson syndrome post-diagnosis and beyond: a proof-of-concept study

The study provides the first formal evaluation of the passport and showed that the tool is acceptable, functional and of benefit to the user. Minor barriers to implementation were identified, largely due to the COVID-19 pandemic and, to a lesser extent, the passport design. There is no comparable tool in use; thus, based on these preliminary findings, it is thought that the passport has a valuable role in supporting this underserved population.

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Publication Details

Journal
Clinical and Experimental Dermatology
Published
2025-03-08
DOI
https://doi.org/10.1093/ced/llaf088
Primary Topic
Drug-Induced Adverse Reactions
Type
article
Field-Weighted Citation Impact
0.00

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article

Co-production of the ‘My SJS Passport’ to support survivors of Stevens–Johnson syndrome post-diagnosis and beyond: a proof-of-concept study

Tom Lawson, Andrew R. Thompson, Jane Evely, Munir Pirmohamed et al.
Clinical and Experimental Dermatology
Drug-Induced Adverse Reactions
article

Co-production of the ‘My SJS Passport’ to support survivors of Stevens–Johnson syndrome post-diagnosis and beyond: a proof-of-concept study

Tom Lawson, Andrew R. Thompson, Jane Evely, Munir Pirmohamed, Lucy Hampson, Jane L. Burns, Anita Hanson, Jennifer Downing, Daniel F. Carr, M P Hill, Nathan Elsdon
article en

Abstract

The study provides the first formal evaluation of the passport and showed that the tool is acceptable, functional and of benefit to the user. Minor barriers to implementation were identified, largely due to the COVID-19 pandemic and, to a lesser extent, the passport design. There is no comparable tool in use; thus, based on these preliminary findings, it is thought that the passport has a valuable role in supporting this underserved population.

Clinical and Experimental DermatologyVol. 50(8)
University of Liverpool (GB), Aintree University Hospitals NHS Foundation Trust (GB), National Institute for Health and Care Research (GB), Health Awareness (United States) (US), University Hospitals Plymouth NHS Trust (GB)
Liverpool University Hospitals NHS Foundation Trust
Good health and well-being
Openalex Percentile: Top 95%
Drug-Induced Adverse Reactions
DOIOpen Access PDFOpenAlex
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Co-production of the ‘My SJS Passport’ to support survivors of Stevens–Johnson syndrome post-diagnosis and beyond: a proof-of-concept study — Tom Lawson, Andrew R. Thompson, et al. · Clinical and Experimental Dermatology (2025) | TGRS Research Map | TGRS