Caregivers’ Experiences of Sleep Systems for Children with Complex Neurodisability: A Qualitative Study
Embedding principles of family-centered care in sleep system assessment, prioritizing caregivers' goals of sleep and comfort, and fostering hope and trust through the co-production of postural care solutions are critical components of care. A shift in focus from "future prevention" of deformity to "protection and comfort" may advance the quality of care and uptake of sleep systems.
Authors
- Rachelle Martin (ORCID: https://orcid.org/0000-0002-9533-3195)
- Jane E. Hamer
- Annemarei Ranta (ORCID: https://orcid.org/0000-0002-3223-3330)
- Fiona Graham (ORCID: https://orcid.org/0000-0003-3550-8640)
Institutions
- University of Otago (NZ)
Publication Details
- Journal
- Physical & Occupational Therapy In Pediatrics
- Published
- 2025-03-04
- DOI
- https://doi.org/10.1080/01942638.2024.2419642
- Primary Topic
- Cerebral Palsy and Movement Disorders
- Type
- article
- Field-Weighted Citation Impact
- 0.00