Bone Health Screening in Persons With Bleeding Disorders: A Survey of United States Haemophilia Treatment Centres

The survey achieved a response rate of 44.8% (66 out of 147 HTCs). Among the responding centres, 21 HTCs (31.8%) reported routinely screening for vitamin D deficiency during annual comprehensive visits, while 13.6% (n = 9) performed regular bone health screenings using DEXA scans. Of these nine centres, three were adult HTCs and six were lifespan HTCs. DEXA scans were ordered either by physicians at the HTC (n = 5, 55.5%) or patients were referred to primary care providers, endocrinologists, or other specialists (n = 4, 44.4%). The top three indications for DEXA scans among the responding HTCs included HIV (n = 7, 77.7%), low physical activity or immobility (n = 6, 66.7%), fractures after a minor fall or injury in patients under 50 years of age (n = 5, 55.5%) and vitamin D deficiency (n = 5, 55.5%). These findings underscore the need for specific standardized screening guidelines to optimize bone health screening in PwH and PwVWD.

Authors

Institutions

Publication Details

Journal
Haemophilia
Published
2025-03-07
DOI
https://doi.org/10.1111/hae.70027
Primary Topic
Hemophilia Treatment and Research
Type
article
Field-Weighted Citation Impact
0.00
Controls
|||
ALL TIME
JAN
FEB
MAR
APR
MAY
JUN
JUL
AUG
SEP
OCT
article

Bone Health Screening in Persons With Bleeding Disorders: A Survey of United States Haemophilia Treatment Centres

Daniel Isaac, Roshni Kulkarni, Sanjay Ahuja, Anjali Sharathkumar et al.
Haemophilia
Hemophilia Treatment and Research
article

Bone Health Screening in Persons With Bleeding Disorders: A Survey of United States Haemophilia Treatment Centres

Daniel Isaac, Roshni Kulkarni, Sanjay Ahuja, Anjali Sharathkumar, Patricia Tobase, Meera Chitlur, Divyaswathi Citla Sridhar, Robert F. Sidonio, Suchitra S. Acharya, Marilyn Manco Johnson
article en

Abstract

The survey achieved a response rate of 44.8% (66 out of 147 HTCs). Among the responding centres, 21 HTCs (31.8%) reported routinely screening for vitamin D deficiency during annual comprehensive visits, while 13.6% (n = 9) performed regular bone health screenings using DEXA scans. Of these nine centres, three were adult HTCs and six were lifespan HTCs. DEXA scans were ordered either by physicians at the HTC (n = 5, 55.5%) or patients were referred to primary care providers, endocrinologists, or other specialists (n = 4, 44.4%). The top three indications for DEXA scans among the responding HTCs included HIV (n = 7, 77.7%), low physical activity or immobility (n = 6, 66.7%), fractures after a minor fall or injury in patients under 50 years of age (n = 5, 55.5%) and vitamin D deficiency (n = 5, 55.5%). These findings underscore the need for specific standardized screening guidelines to optimize bone health screening in PwH and PwVWD.

HaemophiliaVol. 31(3)
University of Iowa (US), Arkansas Children's Hospital (US), Northwell Health (US), Emory University (US), Central Michigan University (US), University of California, San Francisco (US), Cohen Children's Medical Center (US), Children's Hospital of Michigan (US), Indiana Hemophilia and Thrombosis Center (US), University of Colorado Anschutz Medical Campus (US), University of Arkansas for Medical Sciences (US), Michigan State University (US)
Good health and well-being
Openalex Percentile: Top 94%
Hemophilia Treatment and Research
DOIOpen Access PDFOpenAlex
AI Navigator

Ask Laika to Summarize, Analyze, and Connect papers live on the map.

Summarize Papers & Methodologies

Extract key findings, datasets, and comparative methods across publications.

Benchmark Rankings & Visual Analytics

Rank top research institutions, authors, funders, topics, and journals by Field-Weighted Citation Impact (FWCI) and paper volume with instant charts.

Connect Distant Disciplines

Bridge topological clusters on the map to find hidden collaborative intersections.