Engaging Parents of Children With Sickle Cell Disease in Shared Decision‐Making for Hydroxyurea: The ENGAGE‐HU Study
Findings suggest the toolkit may help parents feel more confident in deciding about hydroxyurea. Given the significant impacts of the COVID-19 pandemic on study implementation, the impact on hydroxyurea uptake requires additional exploration. Ultimately, the H-SDM toolkit may be most beneficial for clinics that do not routinely use a shared decision-making process for those considering hydroxyurea.
Authors
- Anna Hood (ORCID: https://orcid.org/0000-0002-7213-1179)
- Francis J. Real (ORCID: https://orcid.org/0000-0002-7980-3185)
- Cara Nwankwo (ORCID: https://orcid.org/0000-0002-1144-9300)
- Lori E. Crosby (ORCID: https://orcid.org/0000-0001-6656-7745)
- Bridget Murphy (ORCID: https://orcid.org/0000-0001-7631-264X)
- Allison A. King (ORCID: https://orcid.org/0000-0002-1951-6176)
- Amy Sobota (ORCID: https://orcid.org/0000-0003-3979-7435)
- Constance A. Mara (ORCID: https://orcid.org/0000-0002-6776-8060)
- Alexis A. Thompson (ORCID: https://orcid.org/0000-0003-4961-8103)
- Aimee K. Hildenbrand (ORCID: https://orcid.org/0000-0003-0147-3232)
- Patricia E. Houston
- Cecelia Calhoun (ORCID: https://orcid.org/0000-0002-4997-1532)
- Michael R. DeBaun (ORCID: https://orcid.org/0000-0002-0574-1604)
- Charles T. Quinn (ORCID: https://orcid.org/0000-0002-2372-2175)
- Sherif M. Badawy (ORCID: https://orcid.org/0000-0002-4739-265X)
- Kay L. Saving (ORCID: https://orcid.org/0000-0003-2876-3889)
- Neha Bhasin
- Lisa M. Shook (ORCID: https://orcid.org/0000-0002-9860-5467)
- Steven Reader (ORCID: https://orcid.org/0000-0002-2676-774X)
- Jean L. Raphael (ORCID: https://orcid.org/0000-0002-8612-1705)
- Marsha Treadwell (ORCID: https://orcid.org/0000-0003-0521-1846)
- Susan E. Creary (ORCID: https://orcid.org/0000-0002-4730-8139)
- Kim Smith‐Whitley (ORCID: https://orcid.org/0000-0002-2790-411X)
- Yolanda Johnson (ORCID: https://orcid.org/0000-0002-5407-6487)
- Rogelle Hackworth (ORCID: https://orcid.org/0000-0002-2648-335X)
- Cynthia Gipson
Institutions
- Northwestern University (US)
- Oklahoma State University (US)
- Cincinnati Children's Hospital Medical Center (US)
- Boston Medical Center (US)
- Lurie Children's Hospital (US)
- Nationwide Children's Hospital (US)
- St. Louis Children's Hospital (US)
- Children's Hospital of Philadelphia (US)
- Howard University (US)
- Thomas Jefferson University (US)
- Illinois College (US)
- University of California, San Francisco (US)
- Pfizer (United States) (US)
- Baylor College of Medicine (US)
- University of Manchester (GB)
- Yale University (US)
- University of Illinois Chicago (US)
- Nemours Children's Health System (US)
- Lurie Children's Hospital (US)
- UCSF Benioff Children's Hospital (US)
- Texas Children's Hospital (US)
- Children's Cancer Center (US)
- Indiana Hemophilia and Thrombosis Center (US)
- Vanderbilt University Medical Center (US)
- University of Cincinnati Medical Center (US)
Publication Details
- Journal
- Pediatric Blood & Cancer
- Published
- 2025-03-06
- DOI
- https://doi.org/10.1002/pbc.31639
- Citations
- 1
- Primary Topic
- Hemoglobinopathies and Related Disorders
- Type
- article
- Field-Weighted Citation Impact
- 1.63
Funders
- Patient-Centered Outcomes Research Institute