Privacy Protection for Open Sharing of Psychiatric and Behavioral Research Data: Ethical Considerations and Recommendations
Data sharing within psychiatric and behavioral research represents a novel application of ethical principles in practice; however, it suffers from a dearth of practical experience and established ethical norms. In this study, we comprehensively examined the ethical considerations surrounding the acquisition, management, sharing, and utilization of such data. We graded sensitive data and suggest ethical standards for privacy protection based on varying levels of data sensitivity. The objective of this study is to foster orderly and standardized open sharing of psychiatric and behavioral research data, thereby advancing the development and progress of related academic disciplines in China. This Chinese expert consensus has been registered on the International Guide Registration platform (Registration Number: PREPARE-2024CN412).
Authors
- Shiqi Xiao
- Qiang Yao (ORCID: https://orcid.org/0000-0002-4408-087X)
- Liping Liao (ORCID: https://orcid.org/0000-0002-8430-1956)
- Qilian He (ORCID: https://orcid.org/0000-0001-7928-1244)
- Yundi Zhang (ORCID: https://orcid.org/0000-0001-5918-0972)
- Leo Yu Zhang (ORCID: https://orcid.org/0000-0001-9330-2662)
- Niuniu Sun
- Lei Shi (ORCID: https://orcid.org/0000-0002-8924-0734)
- Feng Jiang (ORCID: https://orcid.org/0000-0001-6903-9761)
- Xiaoming Zhou (ORCID: https://orcid.org/0000-0003-1398-5382)
- Shihong Su (ORCID: https://orcid.org/0009-0009-9070-1399)
- Li Da Xu (ORCID: https://orcid.org/0000-0002-3263-5217)
- Yibo Wu (ORCID: https://orcid.org/0000-0001-9607-313X)
- Chaofu Ke (ORCID: https://orcid.org/0000-0003-3188-4307)
- Long Liu (ORCID: https://orcid.org/0000-0003-1762-3434)
- Ran Hao (ORCID: https://orcid.org/0000-0002-5170-4994)
- Yanting Lou (ORCID: https://orcid.org/0000-0002-2790-3862)
- Wai‐Kit Ming (ORCID: https://orcid.org/0000-0002-8846-7515)
- Jing Li (ORCID: https://orcid.org/0000-0002-8044-2284)
- Lan Wang (ORCID: https://orcid.org/0000-0002-0430-4138)
- Ning Zhang (ORCID: https://orcid.org/0000-0003-0670-2161)
- Jia Li (ORCID: https://orcid.org/0000-0003-1500-869X)
- Dan Zhang (ORCID: https://orcid.org/0000-0002-2247-5141)
- Wenzhao Wang (ORCID: https://orcid.org/0000-0001-5106-4862)
- Hui Hui (ORCID: https://orcid.org/0000-0002-6732-4232)
- Wu Ju (ORCID: https://orcid.org/0000-0002-2122-3428)
- Zhiqiang Tian (ORCID: https://orcid.org/0000-0002-2296-4543)
- Zhiqiang Song (ORCID: https://orcid.org/0000-0003-0976-419X)
- Xiang Xiao (ORCID: https://orcid.org/0009-0004-2545-7362)
- Qing Du (ORCID: https://orcid.org/0000-0002-4349-5088)
- Mingxu Wang (ORCID: https://orcid.org/0009-0009-1771-2577)
- Siyuan Fan (ORCID: https://orcid.org/0000-0003-3247-115X)
- Lijie Yang (ORCID: https://orcid.org/0000-0003-0958-5183)
- Xinying Sun
Institutions
- Hebei Medical University (CN)
- Shandong University (CN)
- Harbin Medical University (CN)
- Henan University of Science and Technology (CN)
- City University of Hong Kong (HK)
- Shanghai Jiao Tong University (CN)
- Capital Medical University (CN)
- Anhui Medical University (CN)
- Peking University (CN)
- Fudan University (CN)
- Dalian University of Technology (CN)
- Wuhan University (CN)
- Soochow University (CN)
- Tangshan People's Hospital (CN)
- First People's Hospital of Foshan (CN)
- Dalian Municipal Central Hospital (CN)
- Chaohu Hospital of Anhui Medical University (CN)
- Chongqing University of Education (CN)
- Shandong Provincial Hospital (CN)
- Changchun Municipal Engineering Design and Research Institute (China) (CN)
- First Affiliated Hospital of Anhui Medical University (CN)
- Sixth Hospital of Changchun City (CN)
- National Institute for Viral Disease Control and Prevention (CN)
- Peking University Third Hospital (CN)
- Zigong First People's Hospital (CN)
- Second Affiliated Hospital of Zhejiang University (CN)
- Shanxi Academy of Medical Sciences (CN)
- Qilu Hospital of Shandong University (CN)
- Shandong First Medical University (CN)
- Tianjin Medical University (CN)
- Dali University (CN)
- Xi'an Jiaotong University (CN)
- Chongqing Medical University (CN)
- China Medical University (CN)
- Guangzhou Medical University (CN)
Publication Details
- Journal
- ALPHA PSYCHIATRY
- Published
- 2025-02-28
- DOI
- https://doi.org/10.31083/ap38759
- Citations
- 50
- Primary Topic
- Ethics in Clinical Research
- Type
- article
- Field-Weighted Citation Impact
- 93.93