Patient and carer priorities for research and clinical care of children with Down syndrome
This study has given patient and carers the opportunity to determine a patient and carer priority list for clinical care and research for children with Down syndrome.
Authors
- Carmel M Hughes (ORCID: https://orcid.org/0000-0002-4656-6021)
- Barbara Sheil (ORCID: https://orcid.org/0000-0002-6247-4434)
- Belinda Frank
- Helen Wilcox (ORCID: https://orcid.org/0009-0007-9733-7898)
- Britta Sylvia von Ungern-Sternberg (ORCID: https://orcid.org/0000-0002-8043-8541)
- Aine Sommerfield (ORCID: https://orcid.org/0000-0001-8418-5572)
- Emily Rice (ORCID: https://orcid.org/0009-0008-8944-6792)
- Ellen Taylor
- Michaela Rajarathnan
- Nikki Schwagermann
Institutions
- The Kids Research Institute Australia (AU)
- The University of Western Australia (AU)
- Princess Margaret Hospital for Children (AU)
- Environs Kimberley (AU)
- Perth Children's Hospital
Publication Details
- Journal
- Archives of Disease in Childhood
- Published
- 2025-03-06
- DOI
- https://doi.org/10.1136/archdischild-2024-328319
- Citations
- 5
- Primary Topic
- Family and Disability Support Research
- Type
- article
- Field-Weighted Citation Impact
- 11.53
Funders
- National Health and Medical Research Council