Exploring the implementation of a data trust committee: a qualitative evaluation of processes and practices
The DTC played a pivotal role in reshaping research regulatory processes, and how this may benefit patients. However, balancing ethical risks with patient benefits remains an ongoing challenge. Addressing role clarity, communication strategies, and stakeholder engagement is essential for optimising future DTC implementation. Future research should expand to evaluate DTC models across diverse healthcare settings to enhance data sharing frameworks.
Authors
- Cecilia Vindrola‐Padros (ORCID: https://orcid.org/0000-0001-7859-1646)
- Rosamund Yu (ORCID: https://orcid.org/0000-0002-6202-429X)
- Sophie Moniz (ORCID: https://orcid.org/0000-0002-1594-7323)
- Rosaline de Koning (ORCID: https://orcid.org/0000-0002-6349-2220)
- Fiona Bennin (ORCID: https://orcid.org/0009-0000-6738-0544)
- Germán Andrés Alarcón Garavito (ORCID: https://orcid.org/0000-0002-2856-4356)
- Syka Iqbal (ORCID: https://orcid.org/0000-0001-5292-5871)
Institutions
- University of Bradford (GB)
- UCL Biomedical Research Centre (GB)
- University College London (GB)
Publication Details
- Journal
- Research Involvement and Engagement
- Published
- 2025-03-06
- DOI
- https://doi.org/10.1186/s40900-025-00693-4
- Citations
- 1
- Primary Topic
- Data Quality and Management
- Type
- article
- Field-Weighted Citation Impact
- 2.11
Funders
- University College London Hospitals NHS Foundation Trust