The right to information for epilepsy patients in Brazil
Epilepsy is one of the most common neurological conditions, affecting around 50 million people worldwide. It is characterized by a lifelong predisposition to recurrent epileptic seizures. In addition to the neurological and cognitive impacts, patients face social challenges such as discrimination, isolation and difficulties in accessing information. These factors affect their social inclusion and quality of life. In light of this, this article analyzes the importance of public policies that guarantee the right to information for people with epilepsy in Brazil. To this end, a bibliographical review of academic articles and legal documents related to the topic was carried out. The research sought to identify gaps in Brazilian legislation and highlight the need for new policies to ensure access to information. The results show that the lack of specific laws compromises this right, making it difficult to access adequate resources and support. This reinforces the need for new legislation and programs to ensure greater dignity and inclusion for these patients.
Authors
- Francisca Valéria Bezerra Sampaio Marques (ORCID: https://orcid.org/0000-0002-2382-7946)
- Márcia Renata Mortari (ORCID: https://orcid.org/0000-0002-6849-6001)
- Aline Alburquerque
Institutions
- Universidade Católica de Brasília (BR)
- Department of Physiological Sciences (RU)
Publication Details
- Journal
- Heliyon
- Published
- 2025-03-01
- DOI
- https://doi.org/10.1016/j.heliyon.2025.e43102
- Primary Topic
- Pharmacological Effects and Toxicity Studies
- Type
- article
- Field-Weighted Citation Impact
- 0.00
Funders
- Coordenação de Aperfeiçoamento de Pessoal de Nível Superior
- Fundação de Apoio à Pesquisa do Distrito Federal