“We’re all in this together”: patient and public involvement and engagement in developing a new psychosocial intervention for adults with an intellectual disability who display aggressive challenging behaviour
Future work should aim to further develop PPIE processes and identify strategies to maximise the diversity and inclusion of adults with an intellectual disability and family carers in research advisory groups.
Authors
- Carl E Clarke (ORCID: https://orcid.org/0000-0003-2478-3436)
- Kiran Sanger
- Athanasia Kouroupa (ORCID: https://orcid.org/0000-0003-3659-160X)
- Afia Ali (ORCID: https://orcid.org/0000-0002-0104-9370)
- Penny Rapaport (ORCID: https://orcid.org/0000-0003-0479-6950)
- Olumide A. Odeyemi (ORCID: https://orcid.org/0000-0002-6041-5027)
- Rachel Royston (ORCID: https://orcid.org/0000-0002-9901-2284)
- Yufei Jin (ORCID: https://orcid.org/0000-0002-2357-8038)
- Vivien Cooper (ORCID: https://orcid.org/0000-0001-8484-0864)
- Angela Hassiotis (ORCID: https://orcid.org/0000-0002-9800-3909)
- Laurence Taggart (ORCID: https://orcid.org/0000-0002-0954-2127)
- Louise Marston (ORCID: https://orcid.org/0000-0002-9973-1131)
- Robert C. Daniels
- Susan M. Hay
- Ian Penfold
- Claire Pullar
- Adam Southworth
- Lisa Grimley
Institutions
- University of Ulster (GB)
- Queen Mary University of London (GB)
- The Challenging Behaviour Foundation (GB)
- University College London (GB)
Publication Details
- Journal
- Research Involvement and Engagement
- Published
- 2025-03-06
- DOI
- https://doi.org/10.1186/s40900-025-00675-6
- Citations
- 3
- Primary Topic
- Mental Health and Patient Involvement
- Type
- article
- Field-Weighted Citation Impact
- 8.45
Funders
- National Institute for Health and Care Research