Spinocerebellar Ataxia Progression Measured with the Patient‐Reported Outcome Measure of Ataxia
PROM-Ataxia is more sensitive to change than ataxia COAs, captures the evolution of patients' experience of disease over 1 year, and reveals domain-specific progression. Studies of larger cohorts and different ataxia diagnoses over longer periods may provide insights to further enhance clinical care and research. © 2025 International Parkinson and Movement Disorder Society.
Authors
- Sharan R. Srinivasan (ORCID: https://orcid.org/0000-0003-2729-6625)
- Antoine Duquette (ORCID: https://orcid.org/0000-0002-8313-4068)
- Cameron Dietiker
- Sandie Worley
- Christopher D. Stephen (ORCID: https://orcid.org/0000-0002-4727-192X)
- Christopher M. Gómez (ORCID: https://orcid.org/0000-0002-7909-207X)
- Michael D. Geschwind (ORCID: https://orcid.org/0000-0003-2861-3776)
- Alister Burt (ORCID: https://orcid.org/0000-0002-9341-2295)
- Tetsuo Ashizawa (ORCID: https://orcid.org/0000-0001-7180-2869)
- Chiadi U. Onyike (ORCID: https://orcid.org/0000-0003-2255-4437)
- Jeremy D. Schmahmann (ORCID: https://orcid.org/0000-0003-0706-5125)
- Amy Ferng (ORCID: https://orcid.org/0000-0002-4670-2054)
- Liana S. Rosenthal (ORCID: https://orcid.org/0000-0001-5140-3967)
- Henry L. Paulson (ORCID: https://orcid.org/0000-0002-0382-7535)
- Sheng‐Han Kuo (ORCID: https://orcid.org/0000-0002-9412-931X)
- Marie Y. Davis (ORCID: https://orcid.org/0000-0003-2502-6293)
- Anoopum S. Gupta (ORCID: https://orcid.org/0000-0002-8741-0621)
- Andrew Billnitzer (ORCID: https://orcid.org/0000-0001-7062-7771)
- Vikram G. Shakkottai (ORCID: https://orcid.org/0000-0003-2742-6469)
- S. H. Subramony (ORCID: https://orcid.org/0000-0002-8052-9240)
- Puneet Opal (ORCID: https://orcid.org/0000-0001-9110-2202)
- Susan Perlman (ORCID: https://orcid.org/0000-0002-7208-2418)
- Theresa Zesiewicz (ORCID: https://orcid.org/0000-0003-0640-1641)
- Kristen L. Matulis
- George Wilmot (ORCID: https://orcid.org/0009-0006-1972-4780)
- Gilbert L’Italien
Institutions
- Northwestern University (US)
- Harvard University (US)
- Johns Hopkins University (US)
- Emory University (US)
- University of California, Los Angeles (US)
- University of California, San Francisco (US)
- University of Washington (US)
- University of South Florida (US)
- University of Michigan (US)
- Columbia University Irving Medical Center (US)
- University of Florida (US)
- University of Chicago (US)
- Massachusetts General Hospital (US)
- Biohaven Pharmaceuticals (United States) (US)
- Methodist Hospital (US)
- Centre Hospitalier de l’Université de Montréal (CA)
- Southwestern Medical Center (US)
- The University of Texas Southwestern Medical Center (US)
- Florida College (US)
Publication Details
- Journal
- Movement Disorders
- Published
- 2025-03-04
- DOI
- https://doi.org/10.1002/mds.30158
- Citations
- 9
- Primary Topic
- Genetic Neurodegenerative Diseases
- Type
- article
- Field-Weighted Citation Impact
- 8.18
Funders
- National Ataxia Foundation
- Once Upon A Time Foundation