Decentralized Biobanking Apps for Patient Tracking of Biospecimen Research: Real-World Usability and Feasibility Study
Decentralized biobanking apps demonstrate technical feasibility for empowering patients to track donated biospecimens via integration with institutional biobank infrastructure. Our pilot reveals potential to accelerate biomedical research through patient engagement; however, further development is needed to optimize the accessibility, efficiency, and scalability of platform design and blockchain elements, as well as a robust incentive and governance structure for decentralized biobanking.
Authors
- Mario Macis (ORCID: https://orcid.org/0000-0001-6635-2752)
- Andrew Thomas DeWan (ORCID: https://orcid.org/0000-0002-7679-8704)
- Jeffrey Kahn (ORCID: https://orcid.org/0000-0003-2493-2016)
- Marielle S. Gross (ORCID: https://orcid.org/0000-0002-3009-4082)
- Robert C. Miller (ORCID: https://orcid.org/0000-0001-8932-2732)
- Eve Budd
- M Eifler
- William Sánchez (ORCID: https://orcid.org/0009-0009-8437-0386)
Institutions
- DePauw University (US)
- Binghamton University (US)
- Mayo Clinic (US)
- Johns Hopkins University (US)
- Indiana University Hospital (US)
- Johns Hopkins Medicine (US)
- Johns Hopkins Berman Institute of Bioethics (US)
- Mayo Clinic in Arizona (US)
- Mayo Clinic in Florida (US)
- Indiana University – Purdue University Indianapolis (US)
Publication Details
- Journal
- JMIR Bioinformatics and Biotechnology
- Published
- 2025-03-04
- DOI
- https://doi.org/10.2196/70463
- Citations
- 5
- Primary Topic
- Scientific Computing and Data Management
- Type
- article
- Field-Weighted Citation Impact
- 20.84