The participants’ perspective on facioscapulohumeral muscular dystrophy trials in The Netherlands – A qualitative study
This study presents the participants' perspective on FSHD trials, providing important key findings for future clinical trial design, study site practices and patient education.
Authors
- Joost Kools (ORCID: https://orcid.org/0000-0002-6838-9345)
- Nicol Cornelia Voermans (ORCID: https://orcid.org/0000-0002-5837-7295)
- Ria de Haas
- Anke Lanser
- Wija Oortwijn (ORCID: https://orcid.org/0000-0003-4499-8602)
- Eric Sanders (ORCID: https://orcid.org/0000-0001-9946-1138)
- Baziel G.M. van Engelen (ORCID: https://orcid.org/0000-0001-9867-9047)
- Lizan Stinissen (ORCID: https://orcid.org/0009-0003-7180-484X)
- Sietse Bouma
- Emma Lenssen (ORCID: https://orcid.org/0009-0002-2963-8449)
Institutions
- Radboud University Nijmegen (NL)
- Radboud University Medical Center (NL)
Publication Details
- Journal
- Journal of Neuromuscular Diseases
- Published
- 2025-03-04
- DOI
- https://doi.org/10.1177/22143602241313117
- Citations
- 1
- Primary Topic
- Biomedical Ethics and Regulation
- Type
- article
- Field-Weighted Citation Impact
- 1.16