Assessment of health conditions from patient electronic health record portals vs self-reported questionnaires: an analysis of the INSPIRE study
In this nationwide study, patient-portal-derived EHR data enabled extensive capture of patient characteristics across multiple EHR platforms, allowing better disease phenotyping compared with self-report.
Authors
- Kristyn Gatling
- Cecilia Lara Chavez
- Victoria Lyon (ORCID: https://orcid.org/0000-0001-5669-1099)
- Chris Chandler (ORCID: https://orcid.org/0000-0002-5026-7702)
- Zimo Yang (ORCID: https://orcid.org/0000-0002-4792-8231)
- Anna Marie Chang (ORCID: https://orcid.org/0000-0002-6494-9843)
- Jill Anderson
- Erica S. Spatz (ORCID: https://orcid.org/0000-0002-1557-7713)
- Karen Adams
- Phillip B. Watts (ORCID: https://orcid.org/0000-0001-9159-3558)
- Rohan Khera (ORCID: https://orcid.org/0000-0001-9467-6199)
- Michael A. Gottlieb (ORCID: https://orcid.org/0000-0003-3276-8375)
- Robin Kemball
- Jessica Miao
- Sharon Saydah (ORCID: https://orcid.org/0000-0002-6350-5300)
- Carly Shutty
- Arun Kane
- Robert A. Weinstein (ORCID: https://orcid.org/0000-0002-3390-858X)
- Minna Hassaballa
- Shuxia Li (ORCID: https://orcid.org/0000-0001-8095-3175)
- Kristin L. Rising (ORCID: https://orcid.org/0000-0003-3882-4956)
- Robert M. Rodriguez (ORCID: https://orcid.org/0000-0003-1354-1773)
- Zhenqiu Lin (ORCID: https://orcid.org/0000-0002-3089-141X)
- Ryan Jerger
- Aline F Pedroso (ORCID: https://orcid.org/0000-0002-1876-8304)
- Katherine Martin (ORCID: https://orcid.org/0000-0001-9453-9573)
- Sarah G. H. Sapp (ORCID: https://orcid.org/0000-0002-5839-6066)
- Frederick Warner (ORCID: https://orcid.org/0000-0001-5588-7372)
- Grace Amadio
- Zenoura Maat
- Graham Nichol (ORCID: https://orcid.org/0000-0002-2670-0000)
- Kerry Malone
- Mireya I. Arreguin (ORCID: https://orcid.org/0000-0001-8981-5086)
- Ryan Huebinger Site
- Dylan Grau
- Joann G. Elmore (ORCID: https://orcid.org/0000-0002-7311-6835)
- Mengni Liu
- Tracy Stober
- Megan Eguchi
- Paavali Hannikainen (ORCID: https://orcid.org/0000-0001-8957-8121)
- Kelli N. O’Laughlin (ORCID: https://orcid.org/0000-0003-3027-1883)
- Jeremiah Kinsman (ORCID: https://orcid.org/0000-0002-2794-2917)
- Michelle Santangelo (ORCID: https://orcid.org/0000-0003-4353-0995)
- Nikki Gentile
- Kate Diaz Roldan
- Diego Cordero (ORCID: https://orcid.org/0000-0003-2138-2522)
- Robin E. Klabbers (ORCID: https://orcid.org/0000-0002-1462-0046)
- Alex Charlton (ORCID: https://orcid.org/0000-0001-8501-648X)
- Melissa Briggs‐Hagen
- Lauren E. Wisk (ORCID: https://orcid.org/0000-0003-2932-4140)
- Mitsuaki Sawano (ORCID: https://orcid.org/0000-0003-2789-1758)
- Arjun K. Venkatesh (ORCID: https://orcid.org/0000-0002-8248-0567)
- Kari A. Stephens (ORCID: https://orcid.org/0000-0002-2520-5526)
- Juan Carlos C. Montoy (ORCID: https://orcid.org/0000-0001-7438-0243)
- Senyte Pierce
- Jasmine Park
- Raul Moreno
- Michelle L’Hommedieu
- Aron J. Hall (ORCID: https://orcid.org/0000-0001-7250-1013)
- Hailey Shughart
- Imtiaz Ebna Mannan (ORCID: https://orcid.org/0009-0002-8574-5361)
- Morgan Kelly
- Andreas Coppi (ORCID: https://orcid.org/0000-0002-5243-552X)
- Zohaib Ahmed (ORCID: https://orcid.org/0000-0001-8766-4587)
- Ian D. Plumb (ORCID: https://orcid.org/0000-0003-4747-381X)
- Xavier Puente
- Ralph C. Wang (ORCID: https://orcid.org/0000-0001-5382-9486)
- David Cheng (ORCID: https://orcid.org/0000-0002-2816-6585)
- Mandy J. Hill (ORCID: https://orcid.org/0000-0001-9778-358X)
- Caitlin Malicki
- Lindsey Shughart
- Virginia Chan (ORCID: https://orcid.org/0000-0002-8839-896X)
- Angela Wong (ORCID: https://orcid.org/0000-0003-2530-5727)
- Nicole Renzi
- Luis Ruiz
- Antonia Derden
- Ahamed H. Idris (ORCID: https://orcid.org/0000-0001-7113-6499)
- Michael Willis
- Jocelyn Dorney
- Katherine Koo
- Peter Nikonowicz (ORCID: https://orcid.org/0000-0001-5496-5199)
- Rachel E Geyer
- Mary Schiffgens
- Huihui Yu (ORCID: https://orcid.org/0000-0003-4019-3831)
- Samuel McDonald (ORCID: https://orcid.org/0000-0002-8383-3854)
- Andrew Ulrich
- Amro Kaadan
- Gary Chang
- Zihan Zhang (ORCID: https://orcid.org/0009-0000-5235-5178)
- Dana Morse
- Chloe Gomez
- W. Salah
- Kevin Schaeffer
- David Gallegos
Institutions
- Rush University Medical Center (US)
- Centers for Disease Control and Prevention (US)
- Yale New Haven Hospital (US)
- Thomas Jefferson University (US)
- University of California, Los Angeles (US)
- University of California, San Francisco (US)
- National Center for Immunization and Respiratory Diseases (US)
- University of Washington (US)
- John H. Stroger, Jr. Hospital of Cook County (US)
- University of Washington Medical Center (US)
- Yale University (US)
- The University of Texas Southwestern Medical Center (US)
- The University of Texas Health Science Center at Houston (US)
Publication Details
- Journal
- Journal of the American Medical Informatics Association
- Published
- 2025-02-27
- DOI
- https://doi.org/10.1093/jamia/ocaf027
- Citations
- 3
- Primary Topic
- Electronic Health Records Systems
- Type
- article
- Field-Weighted Citation Impact
- 8.81
Funders
- Doris Duke Charitable Foundation
- University of Washington
- Institute of Translational Health Sciences
- National Institutes of Health
- Centers for Disease Control and Prevention
- National Heart, Lung, and Blood Institute
- National Center for Advancing Translational Sciences