<i>It’s like living with a ticking time bomb</i>—A qualitative study about patients’ and their families’ experiences related to the recurrence of a high-grade glioma
Fear of recurrence is prominent in patients with HGG and their families, and the recurrence diagnosis triggers thoughts about death and the end-of-life phase. This new knowledge can be used to tailor support to patients and family members during the disease trajectory and personalize advance care planning consultations.
Authors
- Karin Piil (ORCID: https://orcid.org/0000-0001-7972-4674)
- Karina Dahl Steffensen (ORCID: https://orcid.org/0000-0002-9217-3907)
- Helle Sørensen von Essen (ORCID: https://orcid.org/0000-0003-3033-7598)
- Frantz Rom Poulsen (ORCID: https://orcid.org/0000-0001-5715-6901)
Institutions
- Roskilde University (DK)
- University of Southern Denmark (DK)
- Odense University Hospital (DK)
- Copenhagen University Hospital (DK)
- Region of Southern Denmark (DK)
Publication Details
- Journal
- Neuro-Oncology Practice
- Published
- 2025-02-27
- DOI
- https://doi.org/10.1093/nop/npaf026
- Primary Topic
- Palliative Care and End-of-Life Issues
- Type
- article
- Field-Weighted Citation Impact
- 0.00
Funders
- Odense Universitetshospital
- Novo Nordisk Fonden