Our lives with PKU: German patient voices - “Nothing about us without us”
These consensus statements provide unique insights on how challenges faced by individuals with PKU may be addressed and may provide guidance to HCPs as well as the PKU community and caregivers on ways to improve patient care and support.
Authors
- Angelika Scholz
- Petra Fuchs
- Jens Böhmer (ORCID: https://orcid.org/0000-0001-6801-8352)
- Christian Heimbold
- Karin Lange
- Yvonne Deich
- Daniel Dickneite
- Verena Naunheim
Institutions
- Hohenstein Institute (DE)
- Medizinische Hochschule Hannover (DE)
- Centre for Individualised Infection Medicine (DE)
Publication Details
- Journal
- Molecular Genetics and Metabolism Reports
- Published
- 2025-03-04
- DOI
- https://doi.org/10.1016/j.ymgmr.2025.101201
- Citations
- 1
- Primary Topic
- Metabolism and Genetic Disorders
- Type
- article
- Field-Weighted Citation Impact
- 1.32
Funders
- BioMarin Pharmaceutical