Lived Experiences of Direct Care Givers of Stroke Patients in Khyber Pakhtunkhwa, Pakistan: A Qualitative Study

Each year, approximately 15 million new people are diagnosed with strokes across the globe. Stroke is a profoundly debilitating condition that extends its impact beyond the individual affected, placing a significant burden on the caregivers. Objectives: To explore the lived experiences of direct givers of stroke patients in Khyber Pakhtunkhwa, Pakistan. Methods: In a qualitative study, purposive sampling technique was used in which the caregivers fulfilling the inclusion criteria of the current study were recruited. After ensuring the ethical considerations, total eight in-depth interviews were conducted, and the data saturation was achieved. Interviews were audiotape recorded, transcribed and then thematic analysis approach was followed. Results: The data of eight participants were included in the analysis. Five themes emerged from the data: early disappointment, economic burden, impact on personal life, impact on social life, and coping mechanism. Conclusions: Caregivers often face a multitude of challenges when taking on unexpected responsibilities of care of the loved ones. These difficulties encompass physical demands, psychological strain, social isolation, and financial burdens. Healthcare professionals should consistently educate caregivers on patient care and regularly evaluate their need for counseling and psychological support. Providing caregivers with essential knowledge and addressing their emotional and mental health needs are crucial for ensuring effective and compassionate care for patients.