Person-centred health outcomes in the routine care for people with progressive pulmonary fibrosis: the COCOS-IPF project’s European survey on healthcare professionals’ views and practices
HCPs have identified 40 different outcomes domains in a European multidisciplinary survey on person-centred health outcomes in IPF/PPF. Lung function, exercise capacity, quality of life and chest symptoms were rated as the most relevant health outcomes to be assessed routinely in clinical care. These insights can help to support the development of a COS for IPF/PPF clinical care.
Authors
- Sofie Breuls (ORCID: https://orcid.org/0000-0002-6474-6923)
- Thomy Tonia (ORCID: https://orcid.org/0000-0001-7896-6188)
- Fabienne Dobbels (ORCID: https://orcid.org/0000-0002-9502-7374)
- Liam Galvin (ORCID: https://orcid.org/0000-0003-0004-7776)
- Jeanette Boyd (ORCID: https://orcid.org/0009-0009-8636-8829)
- Steve Jones (ORCID: https://orcid.org/0000-0001-6639-4872)
- Liesbet Van Bulck (ORCID: https://orcid.org/0000-0001-8975-4455)
- Vivien Somogyi
- Nesrin Moğulkoç (ORCID: https://orcid.org/0000-0003-1870-5669)
- Anouk Delameillieure (ORCID: https://orcid.org/0000-0003-1612-0317)
- Wim Wuyts (ORCID: https://orcid.org/0000-0001-9648-3497)
- Zehra Nur Töreyin (ORCID: https://orcid.org/0000-0001-9535-5207)
- Nazlı Üçkuyu
- Silja Schenk
- Nikola Stenzel
- Michael Kreuter
Institutions
- University of Bern (CH)
- Johannes Gutenberg University Mainz (DE)
- British Lung Foundation (GB)
- European Respiratory Society (CH)
- Ege University (TR)
- Psychologische Hochschule Berlin (DE)
- Institute of Social and Preventive Medicine (CH)
- KU Leuven (BE)
Publication Details
- Journal
- Respiratory Research
- Published
- 2025-02-28
- DOI
- https://doi.org/10.1186/s12931-025-03146-4
- Citations
- 1
- Primary Topic
- Interstitial Lung Diseases and Idiopathic Pulmonary Fibrosis
- Type
- article
- Field-Weighted Citation Impact
- 1.52