Quality of Life of Family Caregivers of Adults With Autism: Role of Caregiver Burden, Health, and Social Support of Compound and Noncompound Caregivers

Factors influencing the quality of life (QOL) of parents living with at least one adult child with autism spectrum disorders (ASD) was examined in a sample of 249 caregivers categorized into three types: Compound-1: caring for an adult with ASD along with another adult with a disability; Compound-2: caring for an adult child with ASD and other typically developing child[ren]; and Noncompound: caring for an adult child with ASD. Quantitative analyses indicated that self-reported caregiver health was significantly associated with the QOL for all types of caregivers, while the perceptions of caregiving burden and availability of informal social support varied by type of caregiver. Findings provide insight into the need for professionals to augment support to address the needs of aging parents who have compound caregiving responsibilities that can affect their QOL.

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Publication Details

Journal
Families in Society The Journal of Contemporary Social Services
Published
2025-02-26
DOI
https://doi.org/10.1177/10443894241306145
Primary Topic
Family and Disability Support Research
Type
article
Field-Weighted Citation Impact
0.00
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article

Quality of Life of Family Caregivers of Adults With Autism: Role of Caregiver Burden, Health, and Social Support of Compound and Noncompound Caregivers

Preethy S. Samuel, Christina N. Marsack‐Topolewski, Keith Chan
Families in Society The Journal of Contemporary Social Services
Family and Disability Support Research
article

Quality of Life of Family Caregivers of Adults With Autism: Role of Caregiver Burden, Health, and Social Support of Compound and Noncompound Caregivers

Preethy S. Samuel, Christina N. Marsack‐Topolewski, Keith Chan
article en

Abstract

Factors influencing the quality of life (QOL) of parents living with at least one adult child with autism spectrum disorders (ASD) was examined in a sample of 249 caregivers categorized into three types: Compound-1: caring for an adult with ASD along with another adult with a disability; Compound-2: caring for an adult child with ASD and other typically developing child[ren]; and Noncompound: caring for an adult child with ASD. Quantitative analyses indicated that self-reported caregiver health was significantly associated with the QOL for all types of caregivers, while the perceptions of caregiving burden and availability of informal social support varied by type of caregiver. Findings provide insight into the need for professionals to augment support to address the needs of aging parents who have compound caregiving responsibilities that can affect their QOL.

Families in Society The Journal of Contemporary Social Services
Eastern Michigan University (US), City University of New York (US), Wayne State University (US)
Openalex Percentile: Top 95%
Family and Disability Support Research
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