Psychological supports for people living with a rare disease in Ireland: an online survey-based study
Living with a rare disease is associated with an increased mental health burden. Gaps remain in the provision of psychological supports for people affected by rare diseases. The integration of mental health supports into the care of people living with rare diseases should be a priority for the Irish health service.
Authors
- Eileen P. Treacy (ORCID: https://orcid.org/0000-0002-6226-1615)
- Darragh Nerney
- Alana Ward
- Geraldine Sweeney
- C. Kenny
- Vicky McGrath
- Emer O’Malley (ORCID: https://orcid.org/0000-0002-2745-4526)
- Laura Egan
Institutions
- University College Dublin (IE)
- Trinity College Dublin (IE)
- Mater Misericordiae University Hospital (IE)
- Family Support Network (US)
Publication Details
- Journal
- Irish Journal of Medical Science (1971 -)
- Published
- 2025-02-26
- DOI
- https://doi.org/10.1007/s11845-025-03902-x
- Primary Topic
- Genomics and Rare Diseases
- Type
- article
- Field-Weighted Citation Impact
- 0.00