Comprehensive Analysis of Treatment, Disease Burden, and Quality of Life in Patients with Hypoparathyroidism
Objective: The purpose of this study was to gain insight into the current status of treatment, disease burden, and the impact on the quality of life of patients with hypoparathyroidism (parathyroidism), to assess the effectiveness and limitations of existing treatments, and to explore the patients' need for information about the disease and their expectations of treatment options. Methods: A cross-sectional survey research method was used to collect data on parathyroidism patients' basic information, treatment regimen, frequency of treatment adjustments, treatment costs, clinical symptom control, complications, quality of life, and satisfaction by distributing electronic questionnaires through social media platforms such as WeChat. The questionnaires included patients' personal feelings, treatment outcome scores, disease burden assessment, and needs for healthcare resources. Results: Patients face multiple challenges in the treatment of parathyroidism. Most patients were on a regimen of oral calcium, active vitamin D, and magnesium supplements, but treatment adjustments were frequent, and uncontrolled clinical symptoms were present. Patients generally feel a severe impact on their physical and mental health, with limited work and social activities and low overall quality of life satisfaction. In terms of financial burden, patients suffered high out-of-pocket healthcare costs and had a low evaluation of available treatment resources. Conclusion: Parathyroidism has a significant impact on patients' lives, there are limitations in existing treatment options, and patients are in urgent need of more effective Methods of treatment and more social support. Results provide a basis for improving treatment strategies and quality of life for patients with hypoparathyroidism, pointing out directions for improvement in healthcare policy, healthcare resource allocation, and patient support. (The conclusion of this paper summarizes the main points of the paper and provides readers with clearer information. But it could be more concise and emphasize key points. I think it needs to be rephrased.)
Authors
- Weisi Xia (ORCID: https://orcid.org/0000-0003-0250-4942)
- Xueyu Zhong
- Wen-Bin Zheng
Publication Details
- Journal
- Journal of Clinical Medicine Research
- Published
- 2024-12-24
- DOI
- https://doi.org/10.32629/jcmr.v5i4.3123
- Primary Topic
- Thyroid and Parathyroid Surgery
- Type
- article
- Field-Weighted Citation Impact
- 0.00