Ethics and Governance of Health Research Data in International Organizations: A Framework Analysis

Taking the relevant policies of health research data issued by international organizations as the research object, using the life cycle theory, this paper constructs an international ethics governance framework for health research data from the perspectives of governance stages and means. It summarizes the connotation, means, and policy focus of international organizations' ethics governance for health research data. This paper aims to provide references for countries worldwide to optimize the ethics governance of health-related research data, improve the governance level of health research data, and foster a robust ecosystem for data opening and sharing.