Intensive physical training in children with heritable connective tissue disorders is feasible and safe: a pilot study
This study highlights the potential benefits of tailored physical training for children with HCTD. Despite acceptability challenges, the intervention demonstrated feasibility and safety, providing a foundation for larger-scale effectiveness studies that include systematic feedback mechanisms to enhance participant engagement.
Authors
- Raoul Engelbert (ORCID: https://orcid.org/0000-0002-6923-8696)
- Eugène Rameckers (ORCID: https://orcid.org/0000-0001-6661-6500)
- Jaap Oosterlaan (ORCID: https://orcid.org/0000-0002-0218-5630)
- Liesbeth van Vulpen
- Jessica Warnink‐Kavelaars (ORCID: https://orcid.org/0000-0002-7597-3443)
- Lisanne E. de Koning (ORCID: https://orcid.org/0000-0001-5907-6892)
- Thijs van Meulenbroek (ORCID: https://orcid.org/0000-0002-5636-4511)
- Annelies van der Hulst
- Lies Rombaut (ORCID: https://orcid.org/0000-0001-9027-8070)
Institutions
- Ghent University Hospital (BE)
- Maastricht University (NL)
- Reade (NL)
- Emma Kinderziekenhuis (NL)
- Laban/Bartenieff Institute of Movement Studies (US)
- Adelante (NL)
- Amsterdam University Medical Centers (NL)
- Center for Rheumatology (US)
- Amsterdam University of Applied Sciences (NL)
- Hasselt University (BE)
- University of Amsterdam (NL)
Publication Details
- Journal
- Disability and Rehabilitation
- Published
- 2025-02-24
- DOI
- https://doi.org/10.1080/09638288.2025.2467772
- Citations
- 4
- Primary Topic
- Shoulder Injury and Treatment
- Type
- article
- Field-Weighted Citation Impact
- 8.03
Funders
- Nederlandse Organisatie voor Wetenschappelijk Onderzoek