Global access to management of primary hyperoxaluria: a survey on behalf of OxalEurope, G&K Working Group of the ERA and ESPN
We found global disparities in access to optimal management of PH patients, disproportionately affecting low-income countries, but even existing between high-income countries. These results may provide support for initiatives to improve the outcome of PH patients worldwide in an era of new targeted therapeutic treatments.
Authors
- Jaap W. Groothoff (ORCID: https://orcid.org/0000-0002-8467-3506)
- Roman-Ulrich Müller (ORCID: https://orcid.org/0000-0001-6910-0745)
- Michiel J.S. Oosterveld
- Neveen A. Soliman (ORCID: https://orcid.org/0000-0002-8942-1973)
- Justine Bacchetta (ORCID: https://orcid.org/0000-0002-0578-2529)
- Melvin Bonilla‐Félix (ORCID: https://orcid.org/0000-0001-8295-0015)
- John Andrew Sayer (ORCID: https://orcid.org/0000-0003-1881-3782)
- Lisa J. Deesker
- Lucile Figueres (ORCID: https://orcid.org/0000-0002-1473-2064)
- Pépé Mfutu Ekulu (ORCID: https://orcid.org/0000-0003-0107-483X)
- Sander F. Garrelfs (ORCID: https://orcid.org/0000-0002-6185-2616)
- Michelle A. Baum (ORCID: https://orcid.org/0000-0002-5517-7650)
- Qian Shen (ORCID: https://orcid.org/0000-0003-3056-6737)
- Shabbir H. Moochhala (ORCID: https://orcid.org/0000-0002-8941-6883)
- Reham Almardini
- Laila Oubram
Institutions
- Université Claude Bernard Lyon 1 (FR)
- National Health Service (GB)
- Boston Children's Hospital (US)
- Cairo University (EG)
- University of Puerto Rico, Medical Sciences Campus (PR)
- Lyon College (US)
- University of Cologne (DE)
- The Royal Free Hospital (GB)
- Newcastle upon Tyne Hospitals NHS Foundation Trust (GB)
- Centre Hospitalier Universitaire de Nantes (FR)
- National Institute for Health and Care Research (GB)
- University of Kinshasa (CD)
- Egypt Center for Research and Regenerative Medicine (EG)
- Emma Kinderziekenhuis (NL)
- Hospices Civils de Lyon (FR)
- NIHR Newcastle Biomedical Research Centre (GB)
- Institute for Complex Systems (IT)
- Boston Children's Museum (US)
- Amsterdam University Medical Centers (NL)
- University Hospital Cologne (DE)
- Children's Hospital of Fudan University (CN)
- University College London (GB)
- Newcastle University (GB)
- University of Amsterdam (NL)
- Nantes Université (FR)
Publication Details
- Journal
- Nephrology Dialysis Transplantation
- Published
- 2025-02-21
- DOI
- https://doi.org/10.1093/ndt/gfaf035
- Citations
- 6
- Primary Topic
- Kidney Stones and Urolithiasis Treatments
- Type
- article
- Field-Weighted Citation Impact
- 9.11
Funders
- Société de Néphrologie
- Novo Nordisk
- European Rare Kidney Disease Reference Network