Self-assessment of amyotrophic lateral sclerosis functional rating scale on the patient’s smartphone proves to be non-inferior to clinic data capture
Patients using a mobile application for remote digital self-assessment of the ALSFRS-R revealed younger age, earlier disease course, and faster ALS progression. The finding of non-inferiority of App-ALSFRS-R assessments underscores, that data collection using the ALS-App on the patient's smartphone can serve as additional source of ALSFRS-R in ALS research and clinical practice.
Authors
- René Günther (ORCID: https://orcid.org/0000-0003-0329-5644)
- Maximilian Vidovic (ORCID: https://orcid.org/0000-0003-1453-1681)
- Susanne Petri (ORCID: https://orcid.org/0000-0002-9783-8584)
- Patrick Weydt (ORCID: https://orcid.org/0000-0003-2344-5662)
- Petra Baum (ORCID: https://orcid.org/0000-0002-6926-4907)
- Sarah Bernsen (ORCID: https://orcid.org/0000-0001-7485-2626)
- Jenny Nordén
- Robert Steinbach (ORCID: https://orcid.org/0000-0003-3936-6010)
- Laura Steinfurth (ORCID: https://orcid.org/0000-0001-5503-1742)
- Bertram Walter (ORCID: https://orcid.org/0000-0001-9086-5179)
- Christoph Münch (ORCID: https://orcid.org/0000-0001-9603-0623)
- Péter Körtvelyessy (ORCID: https://orcid.org/0000-0003-1262-6169)
- Peggy Schumann
- Paul Lingor (ORCID: https://orcid.org/0000-0001-9362-7096)
- Thomas Meyer (ORCID: https://orcid.org/0000-0002-2736-7350)
- Jochen Hans Weishaupt (ORCID: https://orcid.org/0000-0002-3399-9784)
- Matthias Boentert (ORCID: https://orcid.org/0000-0001-6133-1397)
- Dagmar Kettemann (ORCID: https://orcid.org/0000-0001-5084-8526)
- André Maier (ORCID: https://orcid.org/0000-0003-2473-4116)
- Torsten Grehl (ORCID: https://orcid.org/0000-0002-0631-6976)
- Jan Christoph Koch (ORCID: https://orcid.org/0000-0002-3778-0683)
- Yasemin Koc
- Susanne Spittel (ORCID: https://orcid.org/0000-0001-9471-7798)
- Ute Weyen
- Julian Großkreutz (ORCID: https://orcid.org/0000-0001-9525-1424)
- Isabell Cordts (ORCID: https://orcid.org/0000-0002-2078-1997)
- Johannes Dorst (ORCID: https://orcid.org/0000-0001-6352-0909)
- Annekathrin Rödiger
Institutions
- University of Bonn (DE)
- Universität Ulm (DE)
- Heidelberg University (DE)
- German Center for Neurodegenerative Diseases (DE)
- University Hospital Heidelberg (DE)
- TUM Klinikum (DE)
- Medizinische Hochschule Hannover (DE)
- Humboldt-Universität zu Berlin (DE)
- University Hospital Münster (DE)
- University Hospital Schleswig-Holstein (DE)
- Universitätsmedizin Göttingen (DE)
- University Hospital Leipzig (DE)
- Jena University Hospital (DE)
- BG University Hospital Bergmannsheil Bochum (DE)
- Alfried Krupp Hospital (DE)
- University Hospital Carl Gustav Carus (DE)
- Technical University of Munich (DE)
- Freie Universität Berlin (DE)
- Technische Universität Dresden (DE)
- Charité - Universitätsmedizin Berlin (DE)
- University of Lübeck (DE)
Publication Details
- Journal
- Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration
- Published
- 2025-02-22
- DOI
- https://doi.org/10.1080/21678421.2025.2468404
- Citations
- 7
- Primary Topic
- Amyotrophic Lateral Sclerosis Research
- Type
- article
- Field-Weighted Citation Impact
- 9.72