Black community member perceptions and ethics recommendations on epigenomic research
While B/AA community members identified risk of both individual and community harm from social epigenomic research, they also perceived potential health benefits for the B/AA community. Through concerted efforts to apply community recommendations to lower risks and enhance benefits, researchers can conduct ethical and valid epigenomic research that aims to address health disparities with historically marginalized communities.
Authors
- Donna Lewis
- Courtney Berrios (ORCID: https://orcid.org/0000-0001-5170-070X)
- Keith Feldman (ORCID: https://orcid.org/0000-0001-6935-5844)
- Tomi Pastinen (ORCID: https://orcid.org/0000-0003-4016-5021)
- Elin Grundberg (ORCID: https://orcid.org/0000-0001-5415-7896)
- Mary E. Moffatt
- Andrea Bradley‐Ewing (ORCID: https://orcid.org/0000-0002-6855-307X)
- Stacey Daniels-Young
- Tammy Basey
Institutions
- Children's Mercy Hospital (US)
- Mercy Hospital (US)
- Mercy Research (US)
- University of Missouri–Kansas City (US)
Publication Details
- Journal
- Clinical Epigenetics
- Published
- 2025-02-22
- DOI
- https://doi.org/10.1186/s13148-025-01840-0
- Citations
- 1
- Primary Topic
- Ethics in Clinical Research
- Type
- article
- Field-Weighted Citation Impact
- 1.88
Funders
- National Institutes of Health
- National Institute on Minority Health and Health Disparities