Actual needs of patients with amyotrophic lateral sclerosis: a qualitative study from Wuhan, China
This study is based on the real experience of ALS patients after diagnosis, and a deep understanding of these experiences can explore the actual needs of patients from many aspects and give reasonable advice and help. Given the particularity of the disease and the uncertainty of treatment, patients will have practical needs for relevant medical support, emotional requirements, physical functions, and other aspects during the period of illness, and the corresponding support is an effective measure to reduce the burden on patients.
Authors
- Man Wu (ORCID: https://orcid.org/0000-0001-9635-2913)
- Guiyuan Qiao (ORCID: https://orcid.org/0000-0003-4223-1635)
- Jing Zhou (ORCID: https://orcid.org/0000-0003-2177-4569)
- Jiali Liu (ORCID: https://orcid.org/0000-0003-4749-3079)
- Dandan Xu
- Chaoyang Li (ORCID: https://orcid.org/0000-0002-8498-737X)
- Fen Yang (ORCID: https://orcid.org/0000-0001-6050-9448)
- Lijuan Zeng (ORCID: https://orcid.org/0000-0002-8836-0793)
- Yiqing Yu (ORCID: https://orcid.org/0009-0008-7020-3598)
- Yufei Qiu
Institutions
- Hubei University of Chinese Medicine (CN)
- Hubei Provincial Hospital of Traditional Chinese Medicine (CN)
- Hubei University Of Economics (CN)
- Wuhan Ship Development & Design Institute (CN)
Publication Details
- Journal
- BMC Palliative Care
- Published
- 2025-02-22
- DOI
- https://doi.org/10.1186/s12904-025-01684-8
- Citations
- 2
- Primary Topic
- Amyotrophic Lateral Sclerosis Research
- Type
- article
- Field-Weighted Citation Impact
- 2.78
Funders
- Natural Science Foundation of Hubei Province