Insights from the European Nontuberculous mycobacterial pulmonary disease PAtient Disease Experience (ENPADE) survey– exploring disease burden and impact
The ENPADE survey outcomes revealed dissatisfaction among patients with care and restrictions in daily life, work, and social activities, often leading to emotional distress. These findings underscore the need for improved disease information, standardised care, and enhanced physician-patient relationships with appropriate support measures.
Authors
- Andreas Reimann
- Michal Shteinberg (ORCID: https://orcid.org/0000-0002-0432-3398)
- Christian Hoenig (ORCID: https://orcid.org/0000-0003-1440-4770)
- Natalie Lorent (ORCID: https://orcid.org/0000-0002-2653-5885)
- Roald van der Laan
- Roger J. Legtenberg
- M Obradović
Institutions
- Technion – Israel Institute of Technology (IL)
- Universitair Ziekenhuis Leuven (BE)
- Carmel Medical Center (IL)
- Insmed (United Kingdom) (GB)
- KU Leuven (BE)
Publication Details
- Journal
- BMC Pulmonary Medicine
- Published
- 2025-02-21
- DOI
- https://doi.org/10.1186/s12890-025-03553-9
- Citations
- 6
- Primary Topic
- Mycobacterium research and diagnosis
- Type
- article
- Field-Weighted Citation Impact
- 8.13
Funders
- Insmed