More than meets the eye: phenomenological insights into the functioning of people with lipoedema
Participants experience that physical complaints affect daily activities, but with adequate adaptability, participation issues are relatively limited. Instead, shame about their appearance and (fear of) stigmatization mainly leads to social avoidance. Additionally, participants long for freedom to do what they want, wear what they want, and desire a different appearance. Therefore, the experienced level of acceptance of the condition is context- and situation-dependent and not straightforward, which is complicated by the burden of knowing that the condition is chronic.
Authors
- Harriët Jager‐Wittenaar (ORCID: https://orcid.org/0000-0003-3928-8075)
- Ad Hendrickx (ORCID: https://orcid.org/0000-0001-8341-0475)
- Rienk Dekker (ORCID: https://orcid.org/0000-0001-6649-6289)
- Renske Eilers
- Aldo Scafoglieri (ORCID: https://orcid.org/0000-0002-9692-9513)
- Lise Maren Kloosterman (ORCID: https://orcid.org/0000-0003-4873-0179)
Institutions
- University Medical Center Groningen (NL)
- Vrije Universiteit Brussel (BE)
- Radboud University Nijmegen (NL)
- University of Groningen (NL)
- Hanze University of Applied Sciences (NL)
- University Medical Center (US)
- Radboud University Medical Center (NL)
- Ziekenhuis Nij Smellinghe (NL)
Publication Details
- Journal
- International Journal of Qualitative Studies on Health and Well-Being
- Published
- 2025-02-20
- DOI
- https://doi.org/10.1080/17482631.2025.2463157
- Citations
- 3
- Primary Topic
- Lymphatic System and Diseases
- Type
- article
- Field-Weighted Citation Impact
- 3.14
Funders
- Hanzehogeschool Groningen