Bioethics Recommendations to Increase Culturally Informed Global Health Survey Research: A Framework for Centering Community Engagement

Global health projects-a source of inspiration and collaboration for applied human biology-benefit scholars, governments, NGOs, and aid organizations. While such research is intended to improve population health, direct benefits to individuals and communities are often excluded from published works and/or not considered in study designs and framing. This exclusion is increasingly recognized as a colonial legacy that hinders global health equity, particularly for Indigenous and other marginalized populations. Collaboration and community engagement are avenues for addressing these injustices, but they require planning, intention, and resources. Drawing on our collective experience and ongoing dialogues about community engagement in human biology, we propose six recommendations to increase equity in global health research. These include: (1) Incorporating trusted local specialists and stakeholders at all project levels; (2) disseminating health information to participants in strengths-based and culturally meaningful ways and contributing to solutions wherever possible; (3) investing in local healthcare, research, and infrastructure; (4) making study results/data available to stakeholders; (5) working within data frameworks that respect community sovereignty; and, (6) applying culturally informed bioethics frameworks. Our discussion highlights persistent needs to address community rights and benefits and to dismantle colonial legacies within global health and human biology while recognizing structural barriers to implementing these needed changes, particularly within the context of global health projects wherein human biologists are not the main power brokers or resource holders. When interfacing with global health, human biologists must continue to pursue health equity and decolonization through implementing critical, culturally informed bioethics frameworks centering community engagement.

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Publication Details

Journal
American Journal of Human Biology
Published
2025-02-01
DOI
https://doi.org/10.1002/ajhb.70011
Citations
2
Primary Topic
Ethics in Clinical Research
Type
article
Field-Weighted Citation Impact
3.76
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article

Bioethics Recommendations to Increase Culturally Informed Global Health Survey Research: A Framework for Centering Community Engagement

Zaneta M. Thayer, J. Josh Snodgrass, Glorieuse Uwizeye, Luseadra McKerracher et al.
2 citations
American Journal of Human Biology
Ethics in Clinical Research
3.76
article

Bioethics Recommendations to Increase Culturally Informed Global Health Survey Research: A Framework for Centering Community Engagement

Zaneta M. Thayer, J. Josh Snodgrass, Glorieuse Uwizeye, Luseadra McKerracher, Alicia M. DeLouize, Alejandra Núñez‐de la Mora, Felicia C. Madimenos, Malcolm Getz
article en
2 citations

Abstract

Global health projects-a source of inspiration and collaboration for applied human biology-benefit scholars, governments, NGOs, and aid organizations. While such research is intended to improve population health, direct benefits to individuals and communities are often excluded from published works and/or not considered in study designs and framing. This exclusion is increasingly recognized as a colonial legacy that hinders global health equity, particularly for Indigenous and other marginalized populations. Collaboration and community engagement are avenues for addressing these injustices, but they require planning, intention, and resources. Drawing on our collective experience and ongoing dialogues about community engagement in human biology, we propose six recommendations to increase equity in global health research. These include: (1) Incorporating trusted local specialists and stakeholders at all project levels; (2) disseminating health information to participants in strengths-based and culturally meaningful ways and contributing to solutions wherever possible; (3) investing in local healthcare, research, and infrastructure; (4) making study results/data available to stakeholders; (5) working within data frameworks that respect community sovereignty; and, (6) applying culturally informed bioethics frameworks. Our discussion highlights persistent needs to address community rights and benefits and to dismantle colonial legacies within global health and human biology while recognizing structural barriers to implementing these needed changes, particularly within the context of global health projects wherein human biologists are not the main power brokers or resource holders. When interfacing with global health, human biologists must continue to pursue health equity and decolonization through implementing critical, culturally informed bioethics frameworks centering community engagement.

American Journal of Human BiologyVol. 37(2)
Dartmouth College (US), Queens College, CUNY (US), The Graduate Center, CUNY (US), Western University (CA), Universidad Veracruzana (MX), University of Oregon (US), Aarhus University (DK), Hokkaido University (JP), Center for Global Health (US), New York Consortium in Evolutionary Primatology (US), Arizona State University (US)
Reduced inequalities
Openalex Percentile: Top 9%
Ethics in Clinical Research
3.76
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