Improving Register Ascertainment of Children With Post‐Neonatally Acquired Cerebral Palsy Through Health Service Partnerships
Ascertainment of children with PNN-CP for the NSW/ACT CP Register has been improved by systematically reviewing children with an acquired brain injury. This is now part of standard practice, and other registers should consider whether this strategy may improve ascertainment of PNN-CP in their regions.
Authors
- Simon Paget (ORCID: https://orcid.org/0000-0001-6605-3330)
- Kerry Hanns
- Georgina Henry (ORCID: https://orcid.org/0000-0002-7763-4656)
- Susan Woolfenden (ORCID: https://orcid.org/0000-0002-6954-5071)
- Emma Waight (ORCID: https://orcid.org/0000-0002-8027-6183)
- Heather Burnett (ORCID: https://orcid.org/0000-0003-1269-4276)
- Anna Ward
- Shona C. Goldsmith (ORCID: https://orcid.org/0000-0003-3903-6142)
- Maria Kyriagis
- Sarah J. McIntyre (ORCID: https://orcid.org/0000-0002-0234-1541)
- Leanne Diviney
- Nadia A. Badawi (ORCID: https://orcid.org/0000-0001-6828-1636)
- Karen Bau
- Amy Shaw
- Hayley Smithers‐Sheedy (ORCID: https://orcid.org/0000-0002-7888-872X)
- Adrienne Epps
- K.A. French
Institutions
- The University of Sydney (AU)
- Cerebral Palsy Alliance (AU)
- Children's Hospital at Westmead (AU)
- Sydney Children's Hospital (AU)
- John Hunter Children's Hospital (AU)
- Sydney Children’s Hospitals Network (AU)
Publication Details
- Journal
- Paediatric and Perinatal Epidemiology
- Published
- 2025-02-18
- DOI
- https://doi.org/10.1111/ppe.70002
- Citations
- 1
- Primary Topic
- Cerebral Palsy and Movement Disorders
- Type
- article
- Field-Weighted Citation Impact
- 1.47
Funders
- University of Sydney