Real-world datasets for the International Registry for Alzheimer's Disease and Other Dementias (InRAD) and other registries: An international consensus
By learning from successful examples in other clinical areas, addressing current limitations, and proactively enhancing data quality and analytical rigor, the InRAD registry will be a foundation to contribute to improving patient care and outcomes in neurodegenerative diseases.
Authors
- David Darby
- Robert Perneczky (ORCID: https://orcid.org/0000-0003-1981-7435)
- Wiesje M. van der Flier (ORCID: https://orcid.org/0000-0001-8766-6224)
- Giovanni Battista Frisoni (ORCID: https://orcid.org/0000-0001-7075-7082)
- Frank Jessen (ORCID: https://orcid.org/0000-0003-1067-2102)
- Robert Hyde (ORCID: https://orcid.org/0000-0002-8705-9405)
- Kee Hyung Park (ORCID: https://orcid.org/0000-0001-6847-6679)
- Catherine J. Mummery (ORCID: https://orcid.org/0000-0002-6739-0803)
- Takeshi Iwatsubo (ORCID: https://orcid.org/0000-0003-1160-8129)
- Johan van Beek (ORCID: https://orcid.org/0000-0002-5641-0004)
Institutions
- University of Cologne (DE)
- German Center for Neurodegenerative Diseases (DE)
- Gachon University Gil Medical Center (KR)
- University Hospital of Geneva (CH)
- Munich Cluster for Systems Neurology (DE)
- UK Dementia Research Institute (GB)
- Amsterdam University Medical Centers (NL)
- University College London (GB)
- Monash University (AU)
- The University of Tokyo (JP)
- Ludwig-Maximilians-Universität München (DE)
Publication Details
- Journal
- The Journal of Prevention of Alzheimer s Disease
- Published
- 2025-02-18
- DOI
- https://doi.org/10.1016/j.tjpad.2025.100096
- Citations
- 8
- Primary Topic
- Dementia and Cognitive Impairment Research
- Type
- article
- Field-Weighted Citation Impact
- 11.77
Funders
- Eli Lilly and Company
- Biogen
- Stiftung VERUM
- Amsterdam University Medical Centers
- National Institute for Health and Care Research
- University of Oxford
- University of Bristol
- University of Tasmania
- Deutsche Forschungsgemeinschaft
- Monash University
- Pusan National University
- Hallym University
- Eisai
- Karolinska Institutet
- Tel Aviv University
- Vrije Universiteit Brussel
- Chinese University of Hong Kong
- Rigshospitalet
- Deutsches Zentrum für Neurodegenerative Erkrankungen
- Universitetet i Oslo
- Ludwig-Maximilians-Universität München
- Hospices Civils de Lyon
- Akershus Universitetssykehus