Caregiving Experiences and Expectations of Turkish Mothers of Children with Disabilities

This study explored the caregiving experiences and expectations of mothers of children with disabilities. Eighteen mothers agreed to participate and share their caregiving experiences and expectations through a semi-structured interview. Using thematic data analysis, three main themes emerged: transformation of a mother, expectations regarding own needs, and expectations regarding child's needs. Findings indicated that mothers required support due to the loss of their role, changes in lifestyle, the impact on family structure, and shortened routines. Mothers reported needing support for their mental and physical health, as well as help with sleep problems. They also expressed a desire to learn how to improve their children's social skills, body structure and function, and independence. The findings highlight the importance of occupational therapists using appropriate approaches based on the mothers' experiences and expectations to improve caregiving.