More than noise: Lived experiences of autistic people in real-life acoustic environments

• Qualitative study based on the thematic analysis of interviews with 12 autistic adults living in the United Kingdom. • There is a lack of understanding and acceptance towards autistic people and what they experience in relation to noise. • The negative impact is experienced on a personal, social, educative and professional level since childhood. • High sensitivity to sound can also lead to great pleasure of music and nature sounds. • There is a need to increase auditory accessibility, as many daily life environments present important aural barriers. The study of the human response to sound has typically considered the average experiences of young individuals with standard hearing capabilities and sensitivity, and although research on high noise sensitivity and its effects is extensive, practical considerations in acoustics are usually limited to specific facilities. Thus, the acoustical characteristics of daily life environments can constitute an important barrier, for example, to autistic people, who often experience high noise sensitivity. To contribute to an in-depth understanding of the impact of noise sensitivity in real-life scenarios, this study presents the results of interviews with 12 autistic adults living in the UK, exploring their lived experiences with sounds, spaces and society. Four themes were developed in the thematic analysis of the interviews: 1) High sound sensitivity affects every aspect of life; 2) Lack of understanding and acceptance − sensory gaslighting; 3) Agency is crucial; 4) Positive impact of music and natural environments. The findings suggest that challenges associated to high noise sensitivity can be the result of a heightened response to sound, but are significantly aggravated by social attitudes to sensory differences and pre-conceptions of what is “normal”. Failing to consider diversity in auditory experiences can have important negative consequences for personal and professional life, financial prospects, health and overall well-being. This study calls to observe these experiences under a human rights lens to guarantee the full participation in society on an equal basis, and to continue the work in aural diversity and auditory accessibility in acoustics and soundscape research and practice.