Pelvic pain & endometriosis: the development of a patient-centred e-health resource for those affected by endometriosis-associated dyspareunia
We developed an educational website for endometriosis-associated painful sex where people can find evidence-based etiologies for pain, pain management options, and actionable resources. Based on the data collected through qualitative interviews with patients, this website can potentially empower people to seek health care. The strength of the website development approach used was the inclusion of qualitative user insights in addition to the commonly completed user tests. The patient interviews provided insights into the potential impact of the website and, thus, ensured that we not only created a functional website that meets end users' needs, but a website that is also meaningful to those affected by this condition.
Authors
- Edurne Lopez de Arbina (ORCID: https://orcid.org/0000-0001-6508-1030)
- Paul J. Yong (ORCID: https://orcid.org/0000-0001-5521-3052)
- Abdul‐Fatawu Abdulai (ORCID: https://orcid.org/0000-0002-9395-8642)
- A. Fuchsia Howard (ORCID: https://orcid.org/0000-0001-5704-1733)
- Leah Tannock
- Heather Noga (ORCID: https://orcid.org/0000-0002-3565-6072)
- Sarah Lett
- Gurkiran Parmar (ORCID: https://orcid.org/0000-0001-9033-1011)
- Jessica Sutherland (ORCID: https://orcid.org/0000-0002-8229-2785)
- Lone Hummelshøj (ORCID: https://orcid.org/0000-0003-1490-7802)
- Catherine Allaire (ORCID: https://orcid.org/0000-0003-0492-5660)
- Phillipa Bridge-Cook
Institutions
- University of British Columbia Hospital (CA)
- University of British Columbia (CA)
- Advisory Board Company (United States) (US)
- Endometriosis UK (GB)
- Women's Health Research Institute (CA)
- B.C. Women's Hospital & Health Centre (CA)
Publication Details
- Journal
- BMC Medical Informatics and Decision Making
- Published
- 2025-02-13
- DOI
- https://doi.org/10.1186/s12911-025-02907-x
- Citations
- 5
- Primary Topic
- Endometriosis Research and Treatment
- Type
- article
- Field-Weighted Citation Impact
- 8.49
Funders
- Michael Smith Health Research BC
- Canadian Institutes of Health Research