How does a preference-based generic health-related quality of life measure perform in patients with a rare disease? Measurement properties of the EQ-5D-Y proxy version among underage patients with neurofibromatosis type 1
EQ-5D-Y is acceptable for measuring HRQL of underage NF1 patients in China. More evidence for using EQ-5D-Y in rare diseases is awaited.
Authors
- Xuejing Jin (ORCID: https://orcid.org/0000-0003-3513-2364)
- Hanfei Wang (ORCID: https://orcid.org/0000-0001-5410-9413)
- Shihuan Cao
- Wanxian Liang
- Lining Zhang (ORCID: https://orcid.org/0000-0001-7252-7168)
- Yusi Suo
- Lujia Yang (ORCID: https://orcid.org/0009-0005-7539-1936)
- Han Wang (ORCID: https://orcid.org/0000-0003-4709-2363)
Institutions
- Beijing University of Chinese Medicine (CN)
Publication Details
- Journal
- Orphanet Journal of Rare Diseases
- Published
- 2025-02-13
- DOI
- https://doi.org/10.1186/s13023-025-03590-x
- Citations
- 1
- Primary Topic
- Health Systems, Economic Evaluations, Quality of Life
- Type
- article
- Field-Weighted Citation Impact
- 3.13
Funders
- Beijing Nova Program