Exploring network relations between healthcare access and utilisation in individuals with rare diseases
This study illuminates the intricate dynamics of healthcare experiences for patients with rare diseases. This work validates network analysis as a valuable tool for examining healthcare systems. Findings can inform policies that address challenges faced by this vulnerable population, namely care integration for individuals with an unstable disease course.
Authors
- Andrew A. Dwyer (ORCID: https://orcid.org/0000-0002-7023-6794)
- Matthias R. Baumgartner (ORCID: https://orcid.org/0000-0002-9270-0826)
- S. Wehrli (ORCID: https://orcid.org/0000-0003-1790-3890)
- Markus A. Landolt (ORCID: https://orcid.org/0000-0003-0760-5558)
Institutions
- Boston College (US)
- University of Zurich (CH)
- Massachusetts General Hospital (US)
- University Children's Hospital Zurich (CH)
- Center for Systems Biology (US)
Publication Details
- Journal
- Public Health in Practice
- Published
- 2025-02-13
- DOI
- https://doi.org/10.1016/j.puhip.2025.100593
- Primary Topic
- Chronic Disease Management Strategies
- Type
- article
- Field-Weighted Citation Impact
- 0.00
Funders
- Universität Zürich