“I don’t see a reason why we should be hidden from view”: Views of a convenience sample of people living with HIV on sharing HIV status data in routinely collected health and care databases in England
PLWH were cautiously in favour of their data being shared for research into HIV, where this could be undertaken with high levels of security, and the close involvement of PLWH to set research agendas and avoid increased stigma.
Authors
- Jaime H. Vera (ORCID: https://orcid.org/0000-0002-1165-0573)
- Michael Smith
- Katie Goddard
- Elizabeth Ford (ORCID: https://orcid.org/0000-0001-5613-8509)
Institutions
- Brighton and Sussex Medical School (GB)
- University Hospitals Sussex NHS Foundation Trust (GB)
Publication Details
- Journal
- PLoS ONE
- Published
- 2025-02-12
- DOI
- https://doi.org/10.1371/journal.pone.0316848
- Citations
- 1
- Primary Topic
- HIV/AIDS Research and Interventions
- Type
- article
- Field-Weighted Citation Impact
- 1.40
Funders
- National Institute for Health and Care Research
- University of Sussex